Got my appointment through: I updated... - Ehlers-Danlos Sup...

Ehlers-Danlos Support UK

2,951 members935 posts

Got my appointment through

rosesinbloom profile image
1 Reply

I updated my old post, but I don't think it's appearing.

Anyway, after a three month wait (I've been putting off chasing it up with the GP surgery) I have got my appointment through for Dr Kazkaz in January next year.

I was very surprised as the woman on the HMS phone helpline said I wouldn't get an appointment from the GP referral as they now only take them from specialists.

I was thinking that if it didn't come through I would pay to see Dr Hakim privately in the new year, and was just discussing that very thing with a friend today who has similar troubles and when I came home the appointment letter was there.

I am a little worried now as I think I may be wasting people's time and effort and money. I've seen so many different doctors, but they always shrug me off, most of the time not fully examining me at all or in full. But now I do have the physio's backing and the fact my left knee keeps popping out of place to me screaming in agony until it rights itself. I know something isn't right, but I just hope it's confirmed this time.

Thanks all for advice and help in everything, and I shall keep you posted on what happens next.

Written by
rosesinbloom profile image
rosesinbloom
To view profiles and participate in discussions please or .
1 Reply
Tillyray profile image
Tillyray

Hi rose.It's good news that you have got your appointment to go to in the new year(its almost upon us) and I hope it all goes well for you..I

need to get a referral after I was discharged by rheumatologist at Manchester Royal( I had waited in agony with my ankle,feet and illness for over 8 months) and I'm now in limbo at the moment with newly diagnosed hypermobility eds and I am researching what to do and where to go next...

I can relate to being 'shrugged off'. It's the story of my life! It's just an awful, demoralising feeling..I'm glad you've kept going..I too have tried to put up with 'my state' and avoided seeking further referrals for periods of time,but I've been too ill and in pain to leave it..

I always liken this search for a doctors knowledge and recognition as 'looking for a needle in haystack',but it will be found🙂 and your physio seems to have been a good one..Your on your way!..Best wishes and good health x

You may also like...

Rheumatology appointment

first rheumatology appointment this morning and I'm left feeling quite confused. I've been told...

Specialist EDS Clinic appointment booked

mention the only time I've seen cases about People of Colour like myself, it's been post-mortem...

First Rheumatologist Appointment

I have been waiting around 5 months for this appointment so I want to get the most out of it plus I...

Endometriosis and EDS/HEDS?

diagnosed with endometriosis, purely coincidence, I've thought I've had it for years, but GP never...

Finally got some answers

that EDS can cause and they panic. So Bristol is now calling EDS type 3, hyper mobility syndrome,...