Advice

[Bowski]

Hello

I've been struggling with high blood pressure over six plus months . I've had several changes of meds but uncontrolled !

Is this EDS related ??

I don't smoke and drink socially , not over weight etc.

Still not controlling bp

[Tillyray]

Hello Bowski. I'm sorry I am unable to offer you advice at this time,but I wanted to say "hi" and to let you know you are not alone and that there is support to be found..

There is much help on the EDS website ehlers-danlos.org

Best wishes and good health x

[Bowski in reply to Tillyray]

Many thanks 😊

[Jay66]

Hi, I have the same problem (although I am overweight), but no-one has suggested it could be related to EDS. POTS, which goes with EDS usually involves too low a blood pressure. However, my father had HBP from his 20s on and died in his 40s of heart attack, so I suspect that mine is more a genetic problem. Mine has been uncontrolled for several years, and I am on 3 meds which are still not controlling it.

[Bowski in reply to Jay66]

Bp still variable but pulse now runs between 47/58