I was diagnosed with hypermobility syndrome in 2014. I had an op on my knee in 2007. Broke my leg in 2010. Physio only look at my knee. Anyway I was doagnosed with fibro in May by another rheumatologist. The app went ok. When the letter came she dropped my diagnosis of hypermobility syndrome and said I only scored 2/9. She did not even do the Beighton score and was previously diagnosed. I am complaining to NHS. But feel as though there is no awareness and there is no support for us.
Diagnosis override and lack of awaren... - Ehlers-Danlos Sup...
Ehlers-Danlos Support UK
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