Sore and stiff joints

[marahmoo]

After years of being misdiagnosed!

50yrs of stiff muscles and sore joints, Joint Hyper-mobility now diagnosed!

Would like to hear if you have this too,

[mia250471]

I have exactly the same symptoms as u. Im 45 and just diagnosed after going to the rheumy thinking i likely had ra. Am only just realising that my joints have been sublaxing for a lifetime (thought this was normal for me). I also have flat feet and have the eds type as i have bowel and bladder issues too.

[LoopyLou72]

I was diagnosed with JHS 3 years ago, aged 40, after all symptoms in childhood and beyond were ignored. I have bowel, bladder and womb, issues too. It's recently been upgraded to EDSHT due to medication dispersing too quickly to be affective and finally being believed regarding local anaesthetics not working. EDS and JHS are now considered to be the same but many doctors see JHS as a lesser diagnosis. I've recently been told that I'm too damaged on the joint front, severe pelvic instability, osteoarthritis in all the joints etc, and poor mobility die to pain when sitting or standing they feel it's likely I'll be a full time wheelchair user within 5 years. I'm currently going through the process for medical retirement, although for local government I appear to be too young to be considered for this, and it's all very frightening. The signs and symptoms were there all along but the damage is irreversible. I'm doing what I can to stay mobile but it's a daily fight and pain is forever increasing. I'm pleased you have the diagnosis finally but it's frustrating that it's taken that long. Physio seems to be the appropriate and preferred treatment but it can do more harm than good as I found out. I now see the rheumatologist every four months which is a good indicator as to whether I'm stabilising or getting worse. She's used to tears in her surgery so bad tissues at the ready. I've got four planned surgeries for the bladder and womb issues now but there's nothing they can do for the rest. Xx