My life long Lupus plus total lack of knowledge by every consultant, GP I have seen is making me weaker by the weak. Any tips would be appreciated. I've come off Esomeprazole now Sulfasazline is working I can see bone leaking through my shins! Now I'm educating consultants about EDS! So far 8! Can anyone advise anything to make me stronger, it's not helped by the fact that medical ignorance of EDS has turned me into a cripple! The little white specks are bone!