Starting with neck pain, I went to visit a chiropractor. The day the pain went away, I started having something similar to absence seizures accept I was able to come out of it (muscle weakness, staring, extreme brain fog) I cant walk down stairs without my legs shaking and sometimes walking normal is difficult. Throughout the last year I have noticed that it starts with a grey out ( I don't pass out completely) then followed by extreme weakness of my body, sensitivity to light, sensitivity to temperature, difficulty breathing, swallowing... I had a neurologist rule out everything and send e on my way, then a endocrinologist, I went to the ER today in the middle of an episode, EKG was normal, bloodwork normal, next step is Cardio... Anyone have something similar?? Thank you for any help
Undiagnosed, Please help: Starting with neck pain, I... - EDMESH
Undiagnosed, Please help
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Hi Tannette
I had similar symptoms esp muscle weakness , shaking of legs while going up and down the stars and feeling of faint while walking . Strange feeling of dizziness which is more like lightheadedness . I was unable to carry on any normal activities which I used to do before these episodes . It’s been 7 months and I have been diagnosed with Chronic Fatigue syndrome after I had lots of blood tests , nerve conduction test, MRIs of brain , spine , neck everything was either in normal range or if it was not the cause of m symptoms.
I actually had to go to my home country for most of the investigations as there was long wait of 3 months to see the neurologist. I was given course of steroids for 1 month and many supplements to increase energy levels which did work and I have been able to recover 80%
I ended up diagnosing myself with botox poisoning. When I looked back at the time line (I had worked for a dermatologist who injected all the girls) it all made sense. I looked up studies and support groups. These people had all the same symptoms. I have been able to detox most of it but still having some issues. I don't love the diagnosis chronic fatigue because it doesn't tell us what the reason is, more a title for the symptoms. Good luck with continued healing!!