EDMESH
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Scared

I am newly diagnosed with CFS and am so scared the way I feel. My eyes go blurry and I can’t focus properly. Also I feel so out of control , get very panicky. Does anyone else feel this way ?

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The panicky feeling of dread is part of it. Do you do meditation or mindfulness? That can help a bit with those feelings. Just remember, the fear will pass, and it's just your brain misfiring in the emotional centre. Good luck.

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Please don't be afraid, I felt the same way as you do when first getting M.E..what you have to remember Fone is that M.E is something to do with your brain, it is sending out messages to your body telling you that this hurts, you cannot see properly etc but really these things are not wrong it is your brain, which is affected by your M.E, which is giving out false information. It is very frightening I know when you can calm yourself you will feel better mentally I promise you. take care you are not alone with this xx

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Thank you so very much x

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Your more than welcome Fone, please get in touch if you need someone to talk to xxxx

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Blurry vision yes, easily feel out of control over the simplest things yes, anxious for no reason yes. As Zondanna says it is all part of it. Don't think it is you, or that it means anything, it is just an overactive response from a body that is finding all its control mechanisms out of whack. Things that help me 1) When I am feeling anxious I tell my daughter how I feel and why and somehow saying it out loud straightens things up a little. You would be amazed at how many times we go through this. As she has ME/CFS too it is a 2 way street. 2) I am kind to myself. If I feel ... today I can't talk to people... then I don't make myself. 3) cbd oil. People will start thinking I have shares in this but I do find it calming without side effects. I buy mine at love cbd at £28.00 a bottle which lasts me about 2 months. 4) Cheaper is amiltriptyline from the GP. A really small dose (half a 10mg tablet) just on the days I feel really shaky. 5) I did a mindfulness course which was very helpful but it can be difficult if you don't feel well enough. 6) facebook.com/groups/meditat... is a nice group of people who are trying out various meditation techniques together. 7) Get the pacing right and it will improve. I can go days, weeks, months, being calm and happy (which is fantastic) overdo things and I am jumpy and stressy again.

Hope you are having the best day you can.

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Yes, I have had some focus issues as well, mainly mental, but now that you mention it, I’ve had the feeling where I’ll be sitting or standing there and it’ll just go blurry or almost feel like I fast forwarded a movie 5 seconds.

I’m sorry you are scared. Hugs to you while you figure this out!

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Hello, I got diagnosed with CFS in 2015; although it is a very scary condition and most of the time frustrating, don't be afraid of how you feel. When I first got diagnosed I made that mistake and it resulted in me having more bad days than good. You learn to know your body and what it is telling you. Now in 2018 I am as in control of my condition as I can be, I have a therapist who does 'The Bowen Technique' (Its really good), also I go and see CFS/ME specialist who is there for me to talk to and support me in dealing with my illness. Don't be scared, don't let the condition define who you are, you are a lot stronger than you think. It will get better. Hope this helps :)

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Where did you manage to find a Specialist? Yes the Bowen Technique is good. I presume you do not live in Wales! There's nothing much going on around here! Not even to get a diagnosis! All the very best.

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I suffer serious brain fog as well, that's how you know your limit of what your doing and with me it's work. Whenever you get blurry eyes and can't concentrate, stop and do a tiny bit more the next day.

Feeling like this will be scary at first but it gets better, trust me! 😊

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