What is wrong with me?

I have never written on a forum before, but after 8 years of thinking I have CFS, but being too embarrassed to talk to anyone about it including my GP (in case they think I am a hyperchondriac) I would really like some opinions from those that know they have it.

I am a Type 1 diabetic, therefore if I tell a doctor I am really tired, they assume it's my diabetes. My sugars run high, everyone puts it down to my insulin control. I have had many muscular problems, numerous Physio appointments that have not helped. I even had a shoulder op last month which hasn't helped. I have always slept loads but always remained tired, infact it's become a joke between me and my friends about how much I sleep.

I will use yesterday as an example. I slept through the alarm and my husband leaving for work. When I woke up I was panicked because I work and it was 9.30am. Despite the panic I couldn't drag myself out of bed for another 30 mins. I took a shower and the energy that took was so overwhelming that I laid on the bed again and woke up 2 hours later. I dressed (which wasn't easy as my shoulder aches so much as it's been frozen for the last year). I went down stairs to feed my dogs and after picking up their bowls, filling them up and then putting them back down on the floor, I had a dizzy spell and had to just hold on to the worktop to steady myself.

I tried to do some emails, but I felt too nauseas, so I ended up feeling guilty and worried while sleeping on the sofa all day. Today I am fine!

Does that sound at all familiar, befire I bother my GP.

1 Reply

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  • Hi. This is a difficult one as I don't know what it's like to have type 1 diabetes but of course you can have more than one illness. When you say "today I feel fine" do you mean that you feel completely normal as in you can do a full time job, cook and clean, run for a bus? And if you did what would be the consequence? would you crash and be exhausted again?

    The day you described is all too "normal" for a person with ME and you should be discussing it with your GP. If you make an energy diary for a month to see how you often you are wiped out and what, if anything, you think caused it that would be very useful to take to your doctor and it would help both of you to get a clearer picture of what's going on.

    Good luck x

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