peritoneal and APD

[Jadey1997]

I do peritoneal dialasys on a night machine and have done for 3 years....have thought about going on hemo.. any thoughts on peoples preferences

[ladybird194]

Hi, I am on CAPD and chose this over Hemo purely for the convenience. With Hemo you are tied to a certain place at a certain time and I wanted to be in control of my dialysis, not it being in control of me.

It really is a personal choice, I like the flexibility of CAPD, if I want to go out for the day, I pack what I need and 'off we go'.

Hope you make the decision that is right for you

[Jadey1997 in reply to ladybird194]

That's the good thing about being on the night machine is I do it whilst I am asleep.... But after being on Dialasys for 3 years I am just getting fed up of doing the same routine every day. And when I have a bad day I think why doni bother... I feel alone and as though I am fighting this disease on my own. Nk one else in my family has kidney issues. But then again. I think I am just feeling sorry for myself lol

[esystems in reply to Jadey1997]

jadey 1977

yes its good iv been doing it for 2 half yrs now it becomes a way of live. id rather do apd than go on hemo.at least u have ur days to do as u wish.

i have my bad days to. ur not alone doing this hundreds ppl do it alone. if u need to talk post me.

[secoxy]

I was on APD twelve years ago, before my transplant, and found it great. However this time round it didn't work and now on haemo. Got to say given the choice much rather be on APD - much less tying (no hospital 3 times a week).

[poppydolly]

i have not started dialysis yet but am planning on doing home apd but as i live alone and have no family support i am nervous at the prospect although i keep being told "you will be fine". trouble is if i am not have got no one to turn to.

[googie in reply to poppydolly]

Talk to your team, as I am pretty sure they normally have very good support groups apd. I think you are given people to ring if you feel that something isnt right and they will come and help you x have a chat with them so you aren't worrying about it xx

[marysmum]

I've been on APD for about 2 and a half years. I've had trouble with it (uncomfortable when draining out, upset tummy, having to disconnect to go to the loo or go to my daughter in the middle of the night) but over all I like the system, it fits in with my lifestyle and with my family commitments. Going on holiday or a night out is more difficult but I have been on numerous camping trips, skiing in Italy and a few overnighters in hotels. Like you I get fed up and feel very sorry for myself but I have to think of all I'm thankful for and 'hooking up' to a machine every night seems a small price to pay to be able to live a reasonably normal life. I'm not sure if I can remain on APD as my PET test earlier this year revealed I wasn't getting sufficient dialysis so my regime has been altered, then now I've discovered that my line is starting to come out!! I hate the idea of Hemo because of the hospital visits (7 hours round trip with treatment for me) and the needles freak me out. I'd consider home hemo if I can get over my issue with needles though. Keep your chin up lovey, it is a very lonely business, we look fine but feel like all the energy's been sapped away, other people who are healthy can't start to understand and even those closest to you keep forgetting. It's probably worth discussing it with your consultant next time you have a check up, he may have an alternative which could suit you better. Hope you get it sorted to suit you.

[pluto94]

I never had the option due to oher health issues and find hemo very restrictive , there are a couple of people in my ward who were on apd till it failed them and they find hemo very restrictive too. Apart from the travel and treatment the diet is stricter to apparantly. I have trip to book odd weekends away which have to be planned at least 6 weeks out to try book other clinic places and get your bloods etc tested a month before you travel , \So far failed to get a place to accept my booking because they have no space. I find hemo very draining , i was told it will improve as time goes on but 8 months into it i still feel washed out.