NHS text? : Kidney function up to 36% from... - Early CKD Support

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NHS text?

Louisemarieevans profile image
9 Replies

Kidney function up to 36% from 19% on diagnosis in November, now stage 3. Has anyone else with similar numbers had the text from NHS yet, with regards to isolating for 12 weeks?

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Louisemarieevans profile image
Louisemarieevans
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9 Replies
gilders profile image
gilders

It's only the Extremely Vulnerable group receiving the "12 weeks" text, not the High Risk group.

Louisemarieevans profile image
Louisemarieevans in reply togilders

Thank you. Great news :)

DeanSamson profile image
DeanSamson

I received the text yesterday and have asthma and PKD. My asthma is well controlled and my PKD is at stage 1. I wouldn't of classed my self as extremely vulnerable. 🤔

rabbit01 profile image
rabbit01

That is great news that your numbers are going the right way! No I have not had a single thing from my kidney clinic.

Netty321 profile image
Netty321

Can you advise how you have managed to improve your kidney function? Well done & thanks in advance!

Louisemarieevans profile image
Louisemarieevans

Everyone is different but the key to my function numbers was controlling my blood pressure and my meds have been tweaked since nov so that my bp will be more controlled. As well has health choices such as no alcohol. My function has actually dropped by 5% to 31% following a phone call with my specialist this week but it is likely due to a new BP I have been taking.

Netty321 profile image
Netty321

Thank you for taking the time to reply! Hope they sort out your BP now, wishing you well - stay safe & sane .

Louisemarieevans profile image
Louisemarieevans in reply toNetty321

Very welcome. Stay safe x

jannor profile image
jannor

I have level 3 but have received no NHS issue regarding my condition. I also have high blood pressure and am a key worker. To be fair to my employer (Council) I can work from home. They have considered me high risk also for the fact I look after my 3 grandchildren due to my daughter in law being a key worker. Although self isolating the issues are enormous due to the fact I still work, am a childminder and also my mum is 91 this year. How far can isolation work when both my husband and son are construction workers and considered fine for work observing the 2m rule.

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