no answers: had stroke early june 201... - Different Strokes

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Bluenose63 profile image
11 Replies

had stroke early june 2017 left side leg arm no use can walk with tripod cant use left arm i home now but i dont see any improvement and no doc can give me an idea if i will ever fully recover ou a timescale i know every stroke is diff for everyone but i am getting so fed up now cant see my life getting better again

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Bluenose63 profile image
Bluenose63
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11 Replies
Kirk5w7 profile image
Kirk5w7

Unfortunately these are the things we are left to deal with, no one can answer your questions many people never regain the use of limbs or are left with facial paralysis. It really does depend on how badly nerves and their pathways are damaged when starved of oxygen.

To give yourself the best chance of any kind of recovery you have to keep on trying to make the limb/ part of the body move in the hope that a new pathway can be made to do just that.

My rehab consultant said practice, practice, practice, no one is born able to juggle, to do that it takes constant practice. As a baby growing to a child and onward only practice meant you were able to learn new skills.

Sorry there is no shortcut, we all wish there was xxxx

Janet

Yb007 profile image
Yb007

Things can get better but requires a lot of hard work on your part... For the physical effects, Physio does work but it takes time and persistence. I can now travel on the tube in my own after 18 months post stroke. Walk very slowly and use an FES device to lift my foot but it's doable.... Patience and perseverance seem to be the key until a miracle cure comes along.

Franny7 profile image
Franny7

The cruellest thing about stroke is having no idea about if or when you will recover function. The general advice is to keep trying with physio,exercise etc- to keep your weak limbs physically in best possible condition and recording even tiny goals achieved. Important to stay positive and hopeful but there's no magic recipe for that unfortunately.

I had a stroke on 6th July 2016 and it has taken until this December for my mental processes to be near normal. On the other hand I'm still partially sighted. Some aspects improve with time and patience.

2stroke profile image
2stroke

Bluenose63

Part of repair must, be belief that things will improve..hopefully they will ,but it may take a while..

A placido effect.???

Good luck and Best wishes..

Brenda1946 profile image
Brenda1946

I had my stroke in 2014 and like you cannot use my left side very well but am trying every day to include it in what i do. My stroke is a little different in one way as i was getting along reasonably well until i fell at home and ended back in hospital and had broken my hip, on the same side as my stroke. It wasn't until 6 wks later going for an x-ray they found i had dislocated my shoulder. It was put back but has made it more difficult to move my arm from the shoulder and still struggle to move it from the shoulder but keep trying. Not sure if this message helps but you are not alone.

Wittycjt profile image
Wittycjt

Bluenose63 it does take time and yes it is very hard to be patient as you wait for things to happen. I also had the stroke effecting my left side, couldn’t walk> then wheel chair> now walking but it is still not a walk like I had pre stroke. Please hang in there and keep telling yourself you can do it. As I have said many times before and truly believe: your mind BELIEVES what YOU tell it...tell it good, positive things like: my arm will move I have the circuitry to move my arm , my leg will move because I have the circuitry to move it. Meanwhile make sure you use your opposite limbs to assist your affected side moving things back and forth- flexing and extending joints. If you have someone who can help you with passive range of motion this will be good to but as you do it give yourself positive affirmations. I know this sounds ridiculous but I truly believe this is what helped me. If you are not familiar with range of motion, look on you tube or ask your nurse, please don’t give in you can do this. Say it I can do this, I can do this, i can do this, i will do this, I will do this, I will do this. Keep on striving let us know at the first twinge of movement. I remember mine started to tingle in individual areas ( hand, wrist, fingers, as well as feet, toes, and legs) and then things began to happen, i was so excited and you will be too👍👍👍👍 I cant wait for you to say hey guess what! Hugs, Cindy

2stroke profile image
2stroke

NEARLY EVERY TIME I POINT OUT SOMETHING THAT ISN'T SO EASY TO DO ,I blame it on the strokes ive survived.

but my lovely daughter does point out ,that in a few months i will be 70, and age doesn't come alone..

Its not easy aging..!! is it?? dddooohhh.

Suzyque profile image
Suzyque

Hi, l am extremely passionate about positive self belief in recovering from a life changing stroke as it happened to me eight years ago. I was in hospital for three months, unable to walk or use my left arm, the most important lesson l learnt was to do whatever it takes to get my life back so you can do it too. Were you given NHS physiotherapy as I found them very helpful? Looking back I felt as you do but when my consultant said that I might not walk again I said to myself...I will show you! I researched online, read many books and did my exercises with a positive thinking mind although sometimes I was tired and despondent. l realise now that perseverance is the key to recovery to train your brain that you can and will get your life back. I do understand that it isn't our normal way of thinking until a stroke happens but please believe me it does work! Wishing you all the very best in your recovery and once again please keep a positive mind. Very best wishes Sue

Brenda1946 profile image
Brenda1946

I agree with all the comments. As i wrote in an earlier message i had and still do have limited movement in my left side but keep trying and cursing under my breath when i can't do it, must drive my husband mad. I know that i will not be able to do things like before but have decided not to throw in the towel yet. So all i can say like everyone else just keep trying and believe in yourself no matter what you do. GOOD LUCK - Brenda

Brenda1946 profile image
Brenda1946

I had my stroke 2014 which left me with no use in my left side. Six months later whilst trying to recover i fell broke my hip on the same side as my stroke which i had to have pinned to add to that whilst having an x-ray they found i had dislocated my shoulder again on the left side. Its now 2018 and i have just now getting some movement but it is my shoulder that gives me the problem have trouble lifting my arm up and doing other things. Still not giving up as i was told to try and include it in all you do know matter how hard it is. So far i have managed to knit do a little sewing (takes me ages to sew buttons). Keep trying no matter how hard you find it and i hope sometime we will get it working again. Good Luck

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