Posts - Cystinuria Support | HealthUnlocked

Cystinuria Support

All posts for January 2020

Tiopronin supply issue

Has anyone been experiencing supply issues with tiopronin medication? I was recently told by Boots the medication I was receiving has been discontinued, so am...

Has anyone been experiencing supply issues with tiopronin medication? I was rece...

Lodgicalwill

•5 years ago

5 Replies

Water

Hi. What's the best high pH water to drink. Thank you

DawnyH

•5 years ago

4 Replies

Can you spare 10 mins to help with a survey?

There is a new Rare Disease survey (The H-Care Survey) which we invite patients and their families with cystinuria to complete. It takes about 10 minutes and...

There is a new Rare Disease survey (The H-Care Survey) which we invite patients ...

MattBultitude

Administrator•5 years ago

4 Replies

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