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Cystinuria Support

All posts for July 2020

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Interested to know how long this cystinuria support page been here. I might have stumbled on it before but recently got an email about it. I welcome anyone to...

Interested to know how long this cystinuria support page been here. I might have...

Alembra

•4 years ago

3 Replies

Cystinuria support and resources?

Hi all. We are involved in a group discussing support for patients (or carers) with cystinuria and rare stones. We would be interesting to hear from you about...

Hi all. We are involved in a group discussing support for patients (or carers) w...

MattBultitude

Administrator•4 years ago

3 Replies

Support during lockdown

Good morning hive mind. I'd be interested to hear how people have sought and received support since the March lockdown. I've just opted for a phone...

Good morning hive mind. I'd be interested to hear how people have sought and rec...

AFCWombles

Administrator•4 years ago

6 Replies

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Coping as a teenage stone owner

Hi, I am a parent of a 13 yr old cystinuria patient (diagnosed at 6-lots of stones) been stone free for years but currently she is really not managing well...

Hi, I am a parent of a 13 yr old cystinuria patient (diagnosed at 6-lots of ston...

Grayeyes

•4 years ago

18 Replies

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