Posts - Cystinuria Support | HealthUnlocked

Cystinuria Support

All posts for March 2020

Appointments

Good morning, I’m guessing that the upcoming appointments, I’ve got one for the beginning of May, are going to be postponed until this horrible situation...

Good morning, I’m guessing that the upcoming appointments, I’ve got one for the ...

F1Guy

•4 years ago

1 Reply

A Time to Say Thank You

The obvious place to give a huge shout out to all who work as part of our NHS. Thank you so much for all that you do, not just in these times, but at all...

The obvious place to give a huge shout out to all who work as part of our NHS. T...

AFCWombles

Administrator•4 years ago

1 Reply

Should I isolate for 12 weeks

I hope everyone is staying well both mentally and physically at this difficult time. As the spread of Covid-19 and the actions we are advised to take...

I hope everyone is staying well both mentally and physically at this difficult t...

Lr1968

•4 years ago

2 Replies

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COVID-19 and Cystinuria

We have had a number of calls, emails and posts on here regarding the effects of COVID-19 on patients with cystinuria. We appreciate the current situation is...

We have had a number of calls, emails and posts on here regarding the effects of...

MattBultitude

Administrator•4 years ago

4 Replies

Classification

I hope everyone is staying safe, this might help

F1Guy

•4 years ago

1 Reply

Define Chronic

Is Cystinuria classed as Chronic

AwesomeAT

•4 years ago

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Self Isolating

Anyone self isolating U.K. with Cystinuria I have a 12 year old

AwesomeAT

•4 years ago

4 Replies

Is cystinuria +/- having one kidney an 'existing underlying condition' making cystinuria patients a vulnerable group re Coronavirus?

Are those of us in otherwise good health a vulnerable group? I heard from someone whose husband has one kidney that Covid-19 leaves kidneys damaged as well as...

Are those of us in otherwise good health a vulnerable group? I heard from someon...

Vict0rian

•4 years ago

3 Replies

Penacillamine issues

When supplies of penacillamine come back in stock the hospitals will be the first to get supplies before being released to other pharmacies.

When supplies of penacillamine come back in stock the hospitals will be the firs...

bertrussell

•4 years ago

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Penacillamine supply issues

Hi have spoken to Mylan this morning who supply/distribute my penacillamine- there is no stock and there is a supply issue. 125mg due in 13th April and 250mg...

Hi have spoken to Mylan this morning who supply/distribute my penacillamine- the...

bertrussell

•4 years ago

1 Reply

Got my penacillamine

Thank you to Guys Hospital for sending them to me

CoCo-balls

•4 years ago

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Appointment Guy Hopsital

Hi, Just wondering if anything been put in place regarding outpatient appointment although mind not till may, will these now be cancel due to the......

Hi, Just wondering if anything been put in place regarding outpatient appointme...

Tkirrage

•4 years ago

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Penicillamine

Still cannot get anywhere. Need help. Does anybody know if Guys Hospital have any ?

Still cannot get anywhere. Need help. Does anybody know if Guys Hospital have a...

CoCo-balls

•4 years ago

2 Replies

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Posts - Cystinuria Support | HealthUnlocked

Cystinuria Support

All posts for March 2020

Appointments

A Time to Say Thank You

Should I isolate for 12 weeks

COVID-19 and Cystinuria

Classification

Define Chronic

Self Isolating

Is cystinuria +/- having one kidney an 'existing underlying condition' making cystinuria patients a vulnerable group re Coronavirus?

Penacillamine issues

Penacillamine supply issues

Got my penacillamine

Appointment Guy Hopsital

Penicillamine

Search posts

Pinned Posts

Latest poll

What has been your experience of access to healthcare support during Lockdown

Archive