Welcome to Cystinuria Support

[KayThomas]

This is my first visit to Cystinuria Support. I am really excited by the opportunity of allowing people and families with the disease to contact each other, share stories and helpful advice. This will be a community of people who really understand what it is to live with the disease cystinuria day in and day out. This is a resource I know has been needed for sometime. I know that this community is a very special one and look forward to contributing where I can.

[Jasper2019]

I passed my first cystine stone in 1978 but was not diagnosed with cystinuria until 1982 since when I have lived a relatively normal life thanks to the amazing care I have received from your team, the Royal Free, other London hospitals and Royal Berks Hospital. I have been monitored at least every six months over the past 37 years. Thank you.