Looking for Help................ - Cure Parkinson's

Cure Parkinson's

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Looking for Help................

ronn profile image
ronn
7 Replies

I have been asked, by our local PD support group (So. Cal.,USA) to assist one of our local high school seniors with a Biology/English project. Her subject is Parkinson's Disease. In preparation for an interview, "Cynthia" sent me a list of 10 questions which will be asked. The questions are excellent, but they point out my unsuitability to represent PWP in an interview. My PD is "late onset", diagnosed two years ago, and has not yet progressed to the point where it is debilitating. My answers to questions such as, "What is it like to live with PD?" and "How has your life changed as a result of your diagnosis?" would not give a true picture of what PD does to its younger victims. I have discussed the problem with the project leader who states that she can adapt the program format to include additional information.

If anyone, from anywhere, preferably an "Early Onset", would be willing to share their own information with these high schoolers, please message me.

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ronn
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7 Replies
Hikoi profile image
Hikoi

I have been asked by my GP to talk about PD to med students on placement with her. I have done so and often get them to watch a short video from u tube in addition to talking with them. I think it fills in some of the gaps that you are concerned about. (Last time i used a video submitted for WPC this year.)

Though you are early days i am sure PD has had an impact, social, emotional, financial as well as physical and you will have valuable insights to share.

Sadiesadie profile image
Sadiesadie

I have PD and was dx in 2000, at the age of 50 and it was determined by the dr. that I probably had had PD for 10 years prior to my dx, if I can be of any help, please let me know.

Johnsilk profile image
Johnsilk

If you send me the questions i will send back answers. I am in a position to answer as I have been active in the PD world and on consume forums as a speaker and a PWP.

You can send me the? via the messaging section of this sight or send me your email in the message section and I will send you back mine so you can email the ?.

DeParkiePoet profile image
DeParkiePoet

I would also answer any questions your protege might have...

maryalice profile image
maryalice

I'd be happy to help, Message me if you still need help.

ronn profile image
ronn

Thank you John and Sally for taking time to help Cynthia with her PD project . Also thanks to Mary Alice and DeParkiePoet for offering. She is rushing to meet a school deadline..

blessed4431 profile image
blessed4431

send me questions also I can respond also

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