Any suggestions for turning over in bed or getting out of bed? It is becoming a problem as my PD progresses...

[ivyanne]

[jillannf6]

i have an addition 2 the doubel bed at my side which i can grab hold of2 get me in and out and to turn over uwith ( turning is hard to do

itis a simple frame provdied by the O|T

are u in th uk?

loljill

-

@=_

[soup]

Many people recommend silk sheets and nightwear. These cut down the friction between you and the bed. Any chance of asking an Occupation Therapist for advice? Oh, I've just looked you up and see that you are not in the UK. I don't know what services you will have access to, but silk sheets appeal to me!

[Hidden]

Go to a medical supply store and get a bar you attach to your bedside. You can grab it to help turn over. And I like satin pajamas! Hope this helps.

Blessings,

Carol. <><

[Dennis in reply to Hidden]

The medical supply store helped me. purchased the bar and it is attached to the bed for me to use in the morning to get out of bed.

Also tried the satin solution. Neither of them hurt anything.

I am glad wer can share what helps and what does not.

[maryalice]

Satin sheets help you slide easier.

[ivyanne in reply to maryalice]

Thank you everyone for your very appreciated help and advice.. Im going online to order now.....satin pjs first

[Hidden]

someone gave me the tip of using satin sheet or satin pyjamas [ but not both at same time ha ] few yrs ago and i have been wearing satin pyjamas since cud not believe the difference and have spread the word ha . i have a hand rail that slips under the mattress and its great for help turning and for to hold on to when sitting at side of bed to help me into standing possition . xx

[olpilot]

Satin pj's and a bedrail are what I use. Actually thev pj's are ..a nylon. Feel like satin but will last much better, and are cheaper. The bedrail is great for getting in and out of bed also. It also.keeps me from knocking things of my bedside table.

F

[shasha]

i use satin sheet on the bottom and satin p'jamas i slip around very easily and it helps my husband too with the maneuvering...

[shasha]

actually are M and S pj's so not real satin

[honeycombe3]

Hi Sharon,

So relieved by the M&S bit - I'm going to try this but as I haven't won the lottery silk is beyond my means. I hope you are well - please keep posting on the site as you have much to share. These seemingly little items can have such an impact - even it's just knowing

that others have the same problems.

If I give you a hug will you slip through my arms?

Angela.

[PatV in reply to honeycombe3]

I find polyester pj's work just as well. I have some silk pj's given me by my daughter. High count cotton sheets are great. Turning over can be a workout if I'm off. I'm usually OK in the morning.

[kirleyvall]

Hello, I also have this problem and have found an App or dvd from Efox.nl

to give (among other things) precise movements for getting into bed, turning

in bed, getting out of bed etc. For me it has been a revelation and so simple.

The satin sheets are on order too !

Hope this may help someone.

Val x

[alllowercase]

I started by buying a lower bed, so that when i sit on the edge, the matress is tight against the back of my knees, and my feet are flat on the floor. I also found a bed that has a 4 inch dummy shelf around it, which is easy to grab either for turning over or getting in and out. I bought the bed frame unit for Argos 3 years ago for about £180, and the matress depends on how much you want to spend.

Before that, on the bad days, I used to get the dog to stand while I used her collar like a grab-rail, but that wouldn't work with a Yorkshire Terrier or something similar (you need a real dog !!!!)

Good luck

[tlongmire in reply to alllowercase]

LOL!! I'm getting a Standard Poodle Assistance dog from Paw-Pals later this year. By the time I get Charlie-Bear he will have in training for two years to meet my needs.

I wished I knew how to send a picture of my boy.He is beautiful and doing extremely well with his training.

[alllowercase in reply to tlongmire]

Sushi has trained herself since my wife went away 7 months ago. First thing she learned was that she could guage my walking performance if she watched my feet, and set her pace to suit. then she started telling me when the electric meter is bleeping for money. she seems to know when cakes or bread need turned round in the oven, and my favourite is that she hates my alarm clock because it is a special for the deaf. it is set for 6 am, but for the last month she has never failed to wake me at 5.59 !!! i am waiting for her to become a back-seat driver !!!

[tlongmire in reply to alllowercase]

Love it! Animals are smart.

[froggatt55]

Satin (like) boxers for me - we had the sheets and pillow cases but nothing stayed on the bed!

I have a review at the local hospital this month and I'm going to ask for an Occupational Therapist to visit to advise on, amongst other things, a rail by the side of the bed - have gone 10 years unassisted but feel now I need some help

Some great ideas from contributors here but that is par for the course. PwP know more about what helps more than the medics

[cabbagecottage]

Get referred to an OT straight away . Until then I agree with everyone . The grab rail is great so is the satin .

My husband was having great difficulty , Both of us were because I am the person who helps him . At 76 not as easy as 26 lol .

He doesn't now wear PJs bottoms , he wears a longer T Shirt . , We have got a profile bed was arranged through the district nurse so can be lowered and higher , The OT has given me a slide sheet and has shown me the best way to use it . It's so simple I can manage it on my own . . once in the middle of the bed . I roll him over to remove it . easy peasy even for me . He has trouble turning and walking backwards onto the bed so we are having a drop down rail from the wall for him to hold on to .

Try and get as much as you possibly can to make this easier for you . You need it NOW not a week before you die . WHICH I HAVE SEEN SO MUCH of .

ALL THIS ENABLES YOU TO STAY IN YOUR OWN HOMES WHICH IS CHEAPER IN THE LONG RUN ..AND HAPPIER .

RIGHT I AM OFF MY SOAP BOXX NOW LOl

[Anemone]

Same old answer, but easy. When I was in the hospital last year my daughter-in-law brought me a long piece of satin-like material. She tucked it under me, over the sheet, and ta da--it worked. I now use one always, and have another in my hospital kit just in case. I also wear slicky (satin?) nightgowns. Now the morning is another thing. I have to take my Rx an hour before I plan to get out of bed. My doc told me it's okay to let them melt in my mouth, then wash it down with sips of water. That's best, because sitting up is almost impossible, and I can sip the water through a straw. No pill swallowing that early for me. Hang in there.

[Helenxxx in reply to Anemone]

Just what i do!!! I bought a length of dress/skirt lining....kept it double and put that across the bed where your bottom and back go. Tuck it well under and it is great. Good luck to all...!!! The lining is the cheap option to silk sheets....and, in my opinion, better!!!! My husband still needs help though as P has progressed. Any other tips gratefully received.

[wifeofparky]

A length of satin or silk as a draw sheet helps movement. I often had to give my hubby a bit of a push to get him started. We also found a very firm mattress helps.No Temperpedics for him

[snorre]

Hi Sharon,

The best is to get used to sleep without anyting on.once you get used to it you will never go back.

[MyownPOV]

yes, my suggestion is to leave a sandwich at the side of the bed that you'll slide off, this way you can enjoy yourself while you wait hours for someone to come in to help you - belch

[MyownPOV]

I have 3 symptoms, make that 4. None of them are terrible except the last one:

1, i have a hrd time putting on a jacket, sweater or shirt. The sleeves get all entangled around back. It doesn't make sense, but then again a lot of PD doesn't make sense.

2. Getting up from a soft sofa or chair. When i'm tired i just go to sleep right where I am

3. I'velost my sense of smell. Truthfully, I dont miss it.

4.I stuttered for most of my life. In the 80's i took a course and cured myself. Parkinsons has brought it back. this is truly hellish. I bought an APP for my iPod that helps me practice. you read outloud and the APP sends your voice back tto you in a delay so when you read or speak it sounds like you are reading with someone.

IM AT THE STAGE WHERE I HATE THE WORD "PARKINSONS.''