Anyone taking LDN?

[batwing7]

[Hidden]

What is it?

[batwing7]

LDN is Low Dose Naltrexone, a treatment for a variety of Autoimmune related diseases. It has so far proved successful for some pd'ers but others have not reported any benefit. There is some info on this site but much more out there on the web. There is actually an LDN web--site lowdosenaltrexone.org

I'm only on my second day of trying it. It may be a long haul.

[Norton1 in reply to batwing7]

Hello,

By what criteria will you judge whether it is successful or not?

Norton

[tlongmire in reply to batwing7]

Please let me know how this works for you. Thanks.

Hugs, Terri

[Susie01 in reply to batwing7]

Thanks for posting the link. This is something I have never heard of but intend to do more research and talk to my doctor.

[Susie01 in reply to batwing7]

Thanks for posting the link. This is something I have never heard of but intend to do more research and talk to my doctor.

[Susie01 in reply to batwing7]

Thanks for posting the link. This is something I have never heard of but intend to do more research and talk to my doctor.

[DeParkiePoet]

Bat wing: Did you get a perscritpion for the LDN? How are you dosing yourself? Are you doing any other treatment?

[batwing7]

The prescription can be attained by email

[e-mail] or calling Clininc158 on 0141 357 7357

A telephone appt with a prescribing doctor is set up (cost £30) and a monthly order is arranged (about £18.50), the bottle and oral syringe comes within a week and you titrate up to 4.5 ml the normal dose after about a month. I hope to judge it's efficacy by how I feel after at least three months or more. I am currently following my own regime -lots of exercise, stretching/yoga, Cytoplan Foundation 2 formula, turmeric, Omega 3 capsules, fortnightly whole body massage, autogenic training and lots of general dietary ongoing essentials like dark fruits (anti oxidants) fibre, water etc. I will treat the LDN as the the new supplement under review and not add anything major so I'll know if it's working. At the mo I am unsure if it is better to take in the morning or bedtime. Anyone have any thoughts?

[maryalice in reply to batwing7]

Can you get a prescription over the phone? What compound pharmacist do you order it from? Do you know if it comes in a capsule?

Thanks for your help.

[maryalice in reply to maryalice]

A clinical trials person told me the best time to take it is 10:00 pm.

[Susie01]

I have no experience, but from what I read, it would be taken between 9 pm and 3 am to work with other hormone production in the body.

[batwing7]

Thx Susie01 and maybe it may help give me a reasonable night's sleep. If LDN just gave me a refreshing night it would be so worth it. Quality sleep with a pwp is, sadly, elusive.

[Norton1 in reply to batwing7]

Hello batwing7,

Please tell us more about the amount of sleep you were getting before LDN and now that you are taking LDN.

Thanks

Norton

[Arctic]

I started taking it a week ago. 3 years since diagnosis of PD at age 47.

Was recommended by a recently retired MD who has PD and who takes LDN.