What an impact ???? in what way please - Cure Parkinson's

Cure Parkinson's

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What an impact ???? in what way please

newdidit profile image
2 Replies

When people change meds, take out ,put in, higher dose, lower dose etc etc. Now and then people will state wow what a difference and wow what an impact please what am I missing.

I am 51 diagnosed 5 years still working just about for 25 hours a week get very weary and stiff first think on getting up could sleep for england but generally I keep going because I push myself currently my cocktail is the follwing

6.30 sinemet, 0.35 mirapexin,0.70 mirapexin, rasagiline

12.30 sinemet, 0.35 mirapexin,0.70 mirapexin,

6.30pm sinemet, 0.35 mirapexin,0.70 mirapexin,

10pm slow release sinemet

I keep going but have never had a wow!!!!!!!

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newdidit
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I found myself being increasingly rooted to the spot, falling, and then along came sinemet, 62.5m, which loosened my limbs, freed my feet and I was walking briskly again. My facial expression has become a look, as opposed to a glare, and yes, night time activity has improved because my body movement has. Tiredness is still a factor but not on the same scale as before, my timing when playing my guitar or keyboard is almost back.

newdidit profile image
newdidit

Hi ....thank you for your comment and I can understand your 'wow' from what you have said.

I live in the UK and see my neurologist every 6 months and my PD nurse in between these times do you think this close monitoring has an impact I think it may.

Are you in UK ? I find it quite startling the efforts other people have to go to for meds and the cost.

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