Hello all! Curious if anyone here has ever experienced gastric freezing while in an off period? Or does the freezing start and the off period begins? If yes, what does it feel like for you? I’m trying to figure out if what I’ve been experiencing is gastric freezing.
Consequently, my L/C is now lasting only an hour and a half to maybe two hours.
I’m starting to think and also starting to figure out how my body is working with the changes that PD brings with it. Any information would be helpful. Thanks.
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MissRita
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Then I guess I’m not quite sure what I feel is going on. For instance I took a pill today at 4:30 and within an hour I could not stop tremoring so as soon as I had a meal I was fine for about 45 minutes to an hour and then my gastric system started to move the food along and as soon as that started happening the tremors started happening and that was around 7 PM tonight and I have not been able to stop shaking since.
I do not understand it either. You have this interesting connection between tremors and what is going on in your G.I. tract. All I can suggest is to try to figure out which are the consistent elements in the pattern.
Tomorrow I will see the neurological nurse practitioner to see what she suggests and also hopefully will see the doctor tomorrow too. It really doesn’t make sense and it just started within the last few weeks. I definitely think it has something to do the enteric nerve and possibly the Vagus nerve.
Basically anytime and I get nervous or have anxiety the gastric system starts and then I start to tremor. Additionally, anytime I’m trying to digest food or if it’s moving along the digestive track I start to tremor. Interestingly yesterday when I went to the bathroom I noticed that when I urinate and have a BM I tremor before during and after and then when the body knows it’s defecated the tremors start to subside but that takes time.
Sounds like the biphasic dyskinesia I used to have. I would tremor (to the point of myoclonic convulsions) for two hours when my C/L dose was starting and ending with an hour to two hours of calm in-between. For some people increasing the dosage helps or a steady state agonist patch like neupro.
Well oddly enough today I went a whole 6 hours with no symptoms! Lol then I took 2 tabs at 130 and have been OK since 3 pm...every day is an adventure! 😎
MissRita, I just read your post from 3 years ago about being in a scary state of paralysis (my term specifically) or off times without L-dopa/ Carbi-dopa. I am into my 14 th year of PD diagnosis and happy to report a mini-victory through a combination of a precise diet (with daily food & symptom journaling), daily high intensity exercise (Stationary bike) & mood boosting socialization! Of course this constant push from this multi-factorial syndrome which we call PD requires daily push-back from us all which can get exhausting; but the minute you let it take the best of you, mentally and physically, you will start declining. My thoughts are that I have to deal with this annoying syndrome for the rest of my life, which was out of my control! But how I deal with its symptoms is totally in my control PD more than likely started in our gut by an unknown virulent bacteria that we ingested or inhaled as the scientists Dr. Braach (husband & wife) have stipulated which then travels to the mid brain where Dopaminergic nerve cells get affected, leading to their degeneration. Through a lot of trial & error over 14 years, I have found foods that either exacerbate my tremors, stiffness, extreme debilitating fatigue and a temporary paralysis that coincides with L-Dopa releases 90 minutes after taking it or foods in a specific quantity and type that help speed up the transit time (combating my gastroperisis) and lifting up my mood as a bonus.
Taking more meds is NOT always the solution for longer off times! You may need to see your neurologist with the help of an educated nutritionist specializing in PD to create an optimal med plan with a specific diet to sustain the efficacy of your L_Dopa/ C-Dopa.
Nutrition in my opinion needs to be prescribed by the neurologist / MDS at the start of our journey.
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PD more than likely started in our gut by an unknown virulent bacteria that we ingested or inhaled as the scientists Dr. Braach (husband & wife) have stipulated which then travels to the mid brain where Dopaminergic nerve cells get affected, leading to their degeneration. Through a lot of trial & error over 14 years, I have found foods that either exacerbate my tremors, stiffness, extreme debilitating fatigue and a temporary paralysis that coincides with L-Dopa releases 90 minutes after taking it or foods in a specific quantity and type that help speed up the transit time (combating my gastroperisis) and lifting up my mood as a bonus.
Question about Freezing
sudden horrible off periods
Freezing
freezing
