With help from Health Unlocked

[monast]

When I had these constant pains on the outside of my right hip, thigh and leg – I received so much good support from you in Parkinson Movements - so I will share my current condition with you.

After having intense pain for several months, I had become quite depressed by this constant pain. And I asked myself: I thought that the specialists around me: family doctor, neurologist and physiotherapist - did not give me a name or diagnosis. I looked for similar pains on the Internet / You Tube and found out that this is an inflammatory condition called Trocanter Bursitis (Trochanteric Bursitis is characterized by painful inflammation of the bursa located just superficial to the greater trochanter of the femur ...... ..)

My doctor confirmed this.

But summer has passed and I have made various attempts to get rid of the pain, and now I'm pain free!!

So when I'm about to tell you what has helped me, I must summarize all the efforts I have tried this summer:

I had two cortisone-injections in the hip by my family-doctor and he told me to take it easy for a little while. But I knew no immediate relief - but my doctor believes that these injections removed the pain.

I also triedt a really hard Trigger point massage that they called Deep Myo-Arthro stimulation, where she used her elbows on the lower part of my back, - and up the spine. I do believe that such a massage is good for me.

Since In my case it's the right foot that bends inward when I stand and walk, I curl it together, I think that this evolves to an inflammation. So I changed my training program for the whole summer:

Starting gently with large arms and legs movements and warm-ups

Exercising my toes / foot and movement of feet in all directions

Some stretching exercises especially for hips

A yoga program for about 30 min especially for back pain

All this I found on You Tube when I searched for Trocanter Bursitis ....

And last - but not least - I followed the advice of Jwess in ParkMov:

Jwess wrote to me: "My left side is effected. I find that gentle stretching, exercise and massage therapy helps. I've discovered that if I lie down and put a tennis ball directly pressing on the painful area (trigger point) and keep pressing, the muscle will relax somewhat. My massage therapist recommended this and said two continue each session until the pain eases then move to another area. This seems to work

as I have a pinched sciatic nerve - pain from my hip / glute shooting all the way down my leg. At first it is uncomfortable (I feel that pinching, tingling sensation), but if i continue pressing on the spot it helps.

I do this several times a day. '

I have also also been an Orthopedist to adapt new soles to have inside my shoes, where he focuses on correcting errors to strain my right foot. It will be exciting to see how this works.

A doctor may begin the diagnosis by asking the patient to stand on one leg and then the other, while observing the effect on the position of the hips. Palpating the hip and leg may reveal the location of the pain, and range-of-motion tests can help to identify its source. Because wear on the hip joint traces to the structures that support it (the posture of the legs, and ultimately, the feet), proper fitting shoes with adequate support are important to preventing GTPS. For someone who has flat feet, wearing proper orthotic inserts and replacing them as often as recommended are also important preventive measures.

Strength in the core and legs are also important to posture, so physical training also helps to prevent GTPS. But it is equally important to avoid exercises that damage the hip.

This was a long story, but again THANK YOU!

[CJ49]

Your condition sounds "similar" to mine. I had my left hip replaced in 2008. The operation went well.....and after a week in rehab, I went home.

Eventually I started to have a pain in my "right" hip, and my right foot would tend to point inward.......then the pain started going down my right leg......I went to the orthopedic doctor, and had an x-ray of my hip and vertebrae.

I have severe scoliosis, and my vertebrae presses on a nerve, hence causing the pain down my leg.........This all started after my right hip was replaced.

To tell you what I'm doing to remedy it may sound a little to "simple, but here it goes.

After my hip was replaced one leg was "longer" than the other,(they don't custom make hip replacements.) ....This difference in foot length caused "pressure" on my vertebrae.....causing my scoliosis to get severe.

My surgeon "should have" told me to get "Lifts" for my shoe to make up for the difference in height.......This should have been "part" of the pre-operation instructions.....and the lifts should be given in the hospital "before" any therapy began.

I went to a therapist to have a lift made, but the therapist kept "forgetting" to order it, and by the time she finally had one made up, it was almost one month later. (That's a lot of walking "unevenly", causing my vertebrae to "shift".)......It was then that I started having back pain.

The lift that was "professionally" made was "pathetic" and came apart.

I went to a medical supply store and they gave me a name of a shoe store in our vacinity that sold quality lifts......After putting a lift in my shoe, the pain "disappated", and I walk very well now.....in fact I walk on the treadmill for 45 minutes at a time, when I have a "good day".

There are days, when the weather changes, that I can't walk very much.....then there are the days when my scoliosis, arthritis, and Parkinson's all act up in unison......those days are very "trying", to say the least.

All in all, I am happy to still be able to walk. I know one day my scoliosis will get so bad that I will probably need a wheelchair........Then I'll have to get one of those "motorized" chairs.....a "red" one............This world is just to "beautiful" to not enjoy.

[monast]

It seems that we all have to be experts on our own body and try to find a solution for our problems. I thought for a while that I could see the doctor, sit down and say: these are my problems, how do I solve it. But that's not how it works. We have to be our own experts in addition to our medical proffesionals around us.

[shasha]

hello - i too have hip replcement with a scoliosis - it ( the scoliosis ) was blamed on my leg being longer than the other - when it was the op that did it ... also i have pain in my right relaced hip but an x-ray revealed nothing other than arthritis in my spine - my doctor here in france said it was tendonitis and has given me pain killers and a special gel which helps when rubbed in - i also put t in my left foot which curls in painfully and it does seem to help - i an in a wheelchair for when i go anywhere but manage to stagger around the house with the great help of my husband - he walks backwards and i griip his forear

ams and that is how i get about - if you want to know more anoout the gel or the pain killers - then in box me !!!

all the best i had busitis before i haD MY HIP REPLACED

[shasha]

P.S I ALSO HVE INSERTS IN MY SHOES WHICH HELP A LOT - THEY WERE PRESCIBED BY THE PODIATRIST AT THE HOSP WHERE I HAD MY HIP REPLACED ( IN THE uk )

[PatV]

You've given me a clue. Hooray

! more later

[monast in reply to PatV]

Dont fortet to come back.....I m curious...

[Yogibear]

Hi, so glad you are doing better. I too have recently discovered trigger point therapy. I have dystonia secondary to PD. Right now its affecting my legs rather than my shoulders. I believe that the constant tension in my muscles is causing knots/trigger points which leads to the pain. Trigger point therapy hurts like hell but I do feel it bring relief. I have a question though do you get bruising on the area you were working on?

[monast]

I got some bruising on some spots but not so many. And the thing with the tennis ball is also a kind of trigger point. i think,

[Maria29]

We most definitely have to be our own advocates. I developed a "syndrome" that causes a great deal of pain from my Toes to my knees, fingertips to my elbows neck & back. It is a searing pain. It starts without warning......sometimes during the night and wakes me up,

My neurologist said it had nothing to do with the PD. Suggested a Rheumatologist... After 3 of those I finally found one who was very sympathetic to my pain and was determined to find out what it was. The diagnosis is "pallendromic rheumatism" It comes and goes but is very easily treated with LOW doses of prednisone. I am now keeping a log, measuring pain and time between "episodes" All this took about one year. I know about the down side of prednisone but I can't live with the pain in addition to my PD symptoms.

[shetawk in reply to Maria29]

If it comes and goes, it may be caused by something you eat. The fact that it worsens with weather is usual with a lot of situations.

Put a food section in your diary to record what you eat and drink and the time. Then you can discover if food is doing it. It may take 3 days for symptoms to show.

My thumb became inflamed and swollen. Noticed that I ate quite a few raw red bell peppers I bought from a farm table. Nixed the peppers and thumb healed in a few days. Tried it three more times (I love peppers) and each time I got a red thumb.

Since peppers are a nightshade, I stopped potatoes, eggplant and tomatoes, too. I felt better in a few weeks. noarthritis.com/

Look for Dr. Sherry Rogers' testimonial.

[monast]

Seems that we are not protected from lots of other pains and diagnoses in addition to PS.

In the beginning of my life with PS we had a joke about us that said: getting PS would protect us from getting other illnesses.

But that's not true, of course...

[shetawk]

Ever hear of low dose naltrexone? Its original use was to take the zip out of drugs for addicts and to treat drug overdoses. Now people have found that a tiny dose can help all kinds of conditions (including PD) and some threw away their pain meds. They have a Yahoo group, too. lowdosenaltrexone.org/

[PatV in reply to shetawk]

I'm going to check this out. Sick and tired of pain.