Dap1948's post about the CUE1 device is the poor excuse for the feeble punning in the title, but I fear I am a Sun newspaper headline writer manque
I have this week borrowed back my SCENAR device from my wife (primarily using it on her mosquito bites) and had 2 stunning successes in dealing with pain and rigidity I assumed were due to PD
(now that I have PD, I blame it for everything)
First was waking up on Tuesday with really bad neck pain linked to right shoulder and forearm pain and eye-watering pain turning my head to the left while driving (a problem made worse by having a right hand drive car in France). A combination of a really useless pillow in our holiday mobile home, and 40km cycle rides putting a strain on my forearm were likely responsible
I spent 15 minutes using the frequency modulation mode on the hotspots in the chain, and it maybe eased it a bit, but not enough and I thought "I'm in real trouble here". I did try a few exercises, particularly slowly rotating my head left as far as I could and just dealing with the pain.
Next morning, I woke up and the pain and stiffness were gone
No2 was even more impressive. Mrs WTP had asked for a proper discussion about my PD and changes to my recent routine. Really she wanted to know about citicoline so I shared a lot of information by email and she asked lots of questions. I thought it was going to be about grumpiness. Instead she was really worried about gait changes. I'm dragging my foot much more noticeably and stiff on start up. Again, a 5 hour car journey to get here probably didn't help.
A pain in my left hip, linked to pain stiffness and numbness down my left leg were significant contributory factors in my view. So I tried the scenar again, and same apparent pattern. No immediate relief. Next day no hip or leg pain, no numbness and no foot drag
Just sayin' 😁
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WinnieThePoo
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What a wonderful read 😆 Sun newspaper headline writer manque and all! I know that dragging foot situation way too well. Tiredness very good at making it happpen. I’m wondering…. 🤔!!
And loose sandals my wife suggested, although she agreed it had stopped and I was wearing the same loose sandals.I had suffered the hip pain, rigidity and leg numbness all holiday and I am near certain that was the cause of the foot drag
"The SCENAR device is a small, hand-held device with transdermal electroneuro-stimulator, graphic display (Professional models), light emitting diodes (models for home use) and audible indications. It delivers non-invasive, computer-modulated therapeutic electro-stimulation via a patient’s skin and involves high amplitude, short-duration waveforms with little discomfort to patients. Due to this device’s high amplitude, small unmyelinated ‘C’ fibres can be stimulated to a higher degree than with other forms of electrotherapy. When sufficiently stimulated ‘C’ fibres trigger neuro- and regulative-peptide release with resultant pain relief and healing. The SCENAR impulse is carried via afferent nerve fibres to regulatory centres in the brain which in turn responds via efferent nerve fibres. SCENAR interprets this response and, via computer modulation, results in its next impulse being modified accordingly which further provides information back to the brain to either amplify or dampen the pathological signals initiating pain, ultimately leading to homeostasis. SCENAR therapy protocols include rating of pain, measurement of range of movement and testing of movement related to functional impairment."
Almost for certain it can help with pain and rigidity relief. Whether all the mumbo jumbo about bio feedback suggests a role as a wannabe cue1 device or similar tactile stimulation I would have thought not. Interestingly I see they now do a glove. Remember the Stamford tactile stimulation glove?
I'm going to ask Sue to do a regular diagnosis and treatment routine on my back and see if it helps with rigidity. (particularly first thing in the morning getting out of bed)
If it does I might investigate some of their more advanced models.
The basic device I have has been perfectly adequate though
Parkbear, I should have thanked you for explaining what the SCENAR device is. Having owned one for around 10 years we just take it for granted and refer to it as my gadget.I found the marketing bullshit off putting, among other things because I learned about them from a lovely but hopeless DIY alternative healer in a business network group and also the Russian space programme stuff was impossible to verify online, and seems unlikely. If it were for real then it would be mainstream news and searchable.
It does have Russian script inside the battery case but it's pricing reflects marketing hype and not component cost. I have the most basic version which I paid nearly £400 for and it probably costs £20 to make.
I bought it because it had a 28 day money back guarantee and expected to return it
My daughter, trained in sports physiotherapy refers to it as my tens machine. But it's clearly a bit more than that.
I hope it helps him if he tries it. Unfortunately they no longer appear to be offering a 28 day money back guarantee so it's a £400 gamble.This appears to be the equivalent of my device although it has a basic lcd screen instead of my even more basic leds
I saw that one on their website, thanks Richard. Just realised a friend of a friend used the Pain Genie on Glen about 2 years ago (she even left it with us for him to try) but it didn't have any effect on his pain. I think it is based on the same principle as Scenar, so unfortunately that doesn't bode well!
The regular diagnose and treat routine is a bit hit and miss. Sometimes we've been amazed by the results and other times thought it about as much use as a chocolate teapot. Whilst still a bit wary of the mumbo-jumbo, we did seem to get better results when we took it seriously, followed the dvd and trained ourselves. I have, I think, worked out how to set it up and adjust it again so when we get home I'll get sue to give my back a proper session and report back. Recently we have only really used it on it's Frequency Modulation mode as a spot pain, bite and sting reliever. It is very effective for that
And I used it like that to treat my neck and hip/leg /foot drag. By leaving it for a couple of minutes on the tight muscles
If you can borrow your friends again it might be worth experimenting with that
And, I am reinspired following this week's results. The neck might have been coincidence, but the hip/leg problem was chronic, at least 2 weeks and had me planning to book an appointment with the neurologist, and it's completely resolved
My husband has used a TENs machine for severe back pain and it does help but it has its limitations with having wiring, sticky pads etc which move when wearing. This looks easier and I m going to explore. Thanks for posting.
I hope it helps. The odd thing is that before this week I'm not sure I had used it since my diagnosis. We are forever rediscovering itI'll ask Sue to do a "proper" session on my back and report back
Just wondering what frequencies and for how long and where you placed the scenar. I have a scenar but have not used it for PD. Very interested in any advice you have to offer.
I'm afraid I'm very casual about this. And mine is a very basic model. So I am now floundering with the how to use it video. But I was using it on FM with the 2nd led lit. Probably about 2 minutes on each spot. I usually try to get a muscle to oscillate and feel I have found a knot as the point I apply it
Yes, I saw they had cheaper ones, but still, it makes my blood boil when I see such blatantly obvious desire to make a lot of money from people's misery! Of course, nobody makes stuff for free, that's not what I'm saying, but one thing is making a fair profit from your hard work and another to take advantage of people's illnesses.
Sorry for my vehement reaction earlier, but we can't always be phlegmatic about everything. I stand by what I said, cause yes, they have cheaper ones (that I can't afford either), but how can they justify over $4,000?
I've had it for many years. The main issue for me is that when I used it, it required frequent applications to maintain the benefit. Somewhat like red light therapy. It mainly sits parked these days except when I use it on others.
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