Can anyone tell me the very last stage, How in may affect someone?

[Ivey]

[wifeofparky]

I don't think I want to know. Looking forward to info on this anyway. Hope someone has the info you are looking for.

[jupiterjane]

For me your question is rather scary! We are all told from the time we are diagnosed that we all may have different symptoms and progress at our own rate. Unfortunately we are all aware that the end may come too soon. I'm just not sure I want to know how the end may be. I do, however, respect your right ask the question and hope you find the answers you seek.

Jupiterjane

[larry33b]

Most patients, if they live long enough are bedridden and die of pneumonia.

[jillannf6]

Hi I have aPSP

know ho w hi it ll ,end peacefully I hope

But not when.

. Jill

[wordworks2001]

There are five stages and many PwP's die a natural death before they reach Stage 5. I have had PD for more than 15 years. I was in Stage 2 when I was first diagnosed and remain in that stage.

Just because you asked, here is Stage 5: "Stage five: The last or final stage of Parkinson's disease usually takes over the patients physical movements. The patient is usually unable to take care of himself or herself and may not be able to stand or walk during this stage. A patient at stage five usually requires constant one-on-one nursing care."

[VeryBlue in reply to wordworks2001]

That sounds like what I would expect, I just wonder how aware the person is by then or if the cognitive changes vary for everyone by time they get to that point...Thanks!

[ronn]

Ivey, I assume that you are asking this question in reference to the 81 year old woman you sit with. It is, understandably, a difficult question to find answers for. The best information I have seen came from googling "last stage Parkinson's". A group called, "Healing well.com" provides a number of accounts from caregivers of stage 5 patients.

I hope this will help you.

[Hidden]

Lets face it we all have to die of something, that romantic notion of dying in bed surrounded by family members all peaceful is I suppose what we could all hope for.

The reality is, we die like most old people with infections, often Pneumonia or renal failure with urine infections. Perhaps we go pretty quick after a stroke or something.

I think the point is which ever way we do fall off our perch, like anyone else it has to be with dignity and that is up to the carers making sure we can.

As my old Gran used to say

Prepare ye for ye know not when.

I think Dying is as natural as living.

[jobby in reply to Hidden]

yep thats about it Oldtyke.

[Jeni in reply to Hidden]

Really??? When did you get Parkinson's? Would you say that if you were diagnosed in your early 30's?

[raff]

But you have to understand nowadays there a few more range of treatments available that can slow and reduce PD symptoms, and hopefully not too far from now there a effective treatments or cure

[camper]

When I was diagnosed about 7 years ago the neurologist said to me- " you won't die of it you'll die with it".

Does this help!

[BILLYRAY]

if u believe in Jesus no worry..u die then go to heaven...or the other hand.......'

[Carrigan]

yes I agree with Bill and also know it will not kill you, just slow you down, you may die from many other things and PD will get in the way. We all have to die of something that sound s hard but true, anyone of us could get run over by a bus, I think dying is probalbly as life individual as you are, don't worry be as happy as you can xx

[BILLYRAY in reply to Carrigan]

VERY TRUE LOVE YOU GUYS HANG N THERE

[VeryBlue]

Humor anyone? Does anyone else recall getting maternal advice to always wear clean underwear in case of accident and need to go to the hospital? This has new meaning now ! You have to laugh or else you cry..."Parkinson's is a life sentence, not a death sentence", we were told by the neuro early on...So true...