In my early 20's I started getting migraine headaches in the brain stem area.
I'd have to go to emergency hospital and get shots of demerol. They would last for a couple of days. Heat seemed to help also. They suddenly stopped about 10 years before I was Dx.
I was wondering if there is a connection to Parkinson's?
I started getting migraines about 4 yrs before I was diagnosed with PD. I take medication to keep them away. Sometimes it works sometimes it doesn't. I know one thing, when I tried to go off of my depression medication, Effexor, it made my migraines so bad I couldn't get out of bed, I think the Effexor must help keep them away. I doubt I will ever be able to go off of it.
When I was 21 in my 1st year of teaching I was driving to work & I felt odd. My left hand felt cold, I started a headache & my tongue felt numb. In morning Assembly I suddenly shouted 'my god I'm going blind' & fell off my chair. I was rushed to the nearest surgery where I watched the GP stick a long needle around my body. I felt nothing on the left side. At first they thought I'd had a stroke but after a while the doctor said I'd had a text-book migraine. I had them for 3 yrs til I got pregnant. 26 yrs later I started having them again. They related to my menstrual cycle. I went on HRT & I haven't had one since (20+ yrs). I don't think they are directly related to my PD.
I've had Migranes since the age of 13 years. It's been much worse in the last few years. Now, Mom is the one with PD. She's never had a migrane before or after she was dxd. I don't know if these are normal results or not.
I have had migraines since I was 16, 60 years ago. First it was half an hour of distorted vision, followed by an intense headache, roughly once a month.
The frequency has fluctuated since I was P diagnosed - initially much less, maybe a couple a year.
Recently however, the migraines have been more frequent - but only the distorted vision - no headache!! And as often as every 3 or 4 days.
I don't know what to make of it but I am happy to be without the pain!
Jupeter--Look-up a question about "Anyone else having vision problems?" by Court. It may answer some questions or allow you to compare your symptoms.
I know what migranes are like! I wish there was a med which worked.
DO YOU REALLY HAVE PD?
For those of you who have stopped progression, what are you doing? 
Thiamine and headache?
Headache?
