my first blog.: hi everyone. my name is... - Cure Parkinson's

Cure Parkinson's

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my first blog.

robbo44 profile image
16 Replies

hi everyone.

my name is john i have been living with pd for two years now. im 44

living life as a painter who loved my 1100cc motorbike and living life

to the full. it started with a slight movement in my right hand and overall

stiffness that i put down to not being as young as i used to be.!! Then after

a trip to the docs and a scan later my life with pd had begun.

after feeling numb for a few months not knowing what lay ahead, how bad

will i get, can i still work, ect. All questions i had. some answers have been

found, i cant continue with painting, the motorbike had to go. but after all the

bad comes the fight back, i am taking simenet 12.5 25 , ropinirole xl 8mg,

selegiline 10mg, the meds need fine tuning but whats new.

the time for feeling sorry for myself is over i am getting back on my push bike

and im going to train for a cycle ride from lands end to john o groats in aid of

parkinsons it will tough but i will get there. parkinsons won round one but i

will win the fight. the cycle ride is just the begining of the fight back, bring

on round two. Thank you for reading.

JOHN.

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robbo44
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16 Replies

Great attitude! I know it will be contagious. Thanks for sharing! :)

Hi John,

Welcome aboard, i live not that far from you in Gartcosh, feel free to contact me any time,

Regards

Al

drew410 profile image
drew410 in reply to

Hey superstar - when does this manchester thing kick off? How's the meds?

Cheers Al

jillannf6 profile image
jillannf6

Hi John

Yes welcome to the site

Lol Jill

:-)

Helshubby profile image
Helshubby

Hi John, as another "youngster" (i'm 46) I've had to cope with a lot of what you're going through.I'm retired now (not my choice!) but am starting to get used to it. I run regularly - will complete my 12th marathon in May (not as fast as i was but as long as i finish i don't care how long it takes) . Good luck with the bike ride/epic journey - if you need a stop in Cumbria give me a shout and i'll put the kettle on !

Stay Strong

Dave

mccshe profile image
mccshe

Sorry you have this story to share, but thanks for doing so.

They say bike riding is one of the best things you can do if you have PD and are able to.

Lots of luck to you in that ride you are going on! You have lots of support!!

robbo44 profile image
robbo44

thanks a lot for the kind comments. its sites like this that gives the support we all need at times.

thanks agian

john.

drew410 profile image
drew410

John, you have a brilliant attitude. Long may it remain. Good to see another Scot in the club. Be well

Carrigan profile image
Carrigan

My husband was diagnosed at about the same age 17 yrs ago, he had to give up driving and cyling initially by now still rides his bike. He is chairman of our local PD branch and kept very busy, it is not easy but I admire him for his spirit. Its hard to take in at first diagnosis, but it sounds like you have accepted it and are getting on. Well done keep it up do not let it beat you, work around it when you can. Good Luck

honeycombe3 profile image
honeycombe3

Robbo, you have the right site for sanctuary & support - it's good to have you with us. Keep those wheels turning, Angela

Court profile image
Court

Hi John. Well you have found the all happening site now you have found us. You seem to be coping really well. I, too, started with a tremor in my right hand over 6 years ago.

I really admire your determination to cycle from John O Groats to Lands End and would be pleased to sponsor your ride. Round one is the worst. When you are through that you seem to get strength to fight, fight, fight with all your might.

You can always find someone who can answer your questions on this site. It certainly is not all doom and gloom.

Good luck

Sue

Gloria1952 profile image
Gloria1952

Welcome John. This is the best site that I have found. Great attitude!

Gloria1952

robbo44 profile image
robbo44

thanks agian to everyone for the support. will keep you informed how the training is going, cheers john

CheriH profile image
CheriH

Hi John,

Here's a big welcome from the state of Tennessee in the USA! I like your attitude! We all have to keep on going and support each other. I found a home when I happened upon this site. I hope you will feel that way too.

Cheri :)

chrismw profile image
chrismw

Hey John, welcome to the group! This site has been a lifesaver; hope you find it so too.

Chris

GrammyC profile image
GrammyC

Indiana welcomes you, John. This sight is a daily helper to me. I think of it as a wonderful vitamin! Keeping a positive attitude is so important. These folks all walk the same path and are so understanding.

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