My impossible dream of defeating Gulliver with a swarm of Lilliputians... and books, posts, etc.

[parkinsonshereandnow]

I have been attentive to the world of Parkinson's for 31 years since my father was diagnosed in 1994.We wasted many years between prejudice and ignorance. By the time we learned interesting things, it was too late for him. But with a strong spirit about what was happening to him that still touches me today, he asked me not to stop learning and publishing so that what we learned would benefit others. He passed away in 2012 and I continued to search and write.

On my blog “Parkinson's Here and Now”, in Spanish and English, is everything important published, with free books and booklets in both languages.

The 2015 book was a tribute to my father. The logbook of our trip.

The 2021 one was the book I would have wanted to have on hand in 1994. I looked for a provocative title and a more subdued subtitle: "The Parkinson's Cure. Do we already know what it takes to beat Parkinson's?"

My goal was twofold: to help the community and to make as much money as possible so I could devote 24/7 to researching, writing and disseminating.

But it didn't work out.

So I will be posting all the chapters in this extraordinary forum where I have learned a lot.

When I wrote the 2015 book I spent several months dedicating 12-16 hours a day.

Today it is no longer possible. I would need months to accumulate what was necessary in the clouds of my mind to come up with worthwhile rays: locus ceruleus and noradrenaline, blood-brain barrier, subclinical deficiencies and epigenetics, homocysteine, etc.

I wish and hope that others can in the near future help to round up Parkinson's diseases and starve them to death.

[ktbooks77]

Thank you, PHN. I look forward to reading your chapters. Your posts been helpful and informative. We were on a similar journey as my mother was diagnosed around the same time as your father. Now I am six years into my own journey with this disease as well, but with more information more optimism. Best to you.

[PDFree]

It may not have worked out exactly as the dream you and your father held but you have still done so much good with your generosity and dedication to that dream. You have contributed so much to this community not only by giving us hope, curiosity and knowledge that there are many ways we can help ourselves and improve our lives but also to believe that a cure could be truly possible someday. I believe you fully honored your father's wishes and I think your torch will soon be transferred to the next Parkinson's angel to carry on your work. Thank you for all you've done and shared with us.

[Tayogi]

Thank you for all your hard work and research, I appreciate it very much!

[JayPwP]

I thoroughly enjoy, and learn as well, from your writings.

Your love for your father shines through your dedication.

Thank you 🙏

[M0ltosicura]

Ciao. Come posso fare per leggere i tuoi scritti? Sono nuova qui mio marito ha la diagnosi dal 2013.

[parkinsonshereandnow in reply to M0ltosicura]

Ciao. Here parkinsonhereandnow.blogspo...

[Gymsack]

Your story reminds me of Don Quixote , Man of La Mancha

To right the unrightable wrong / To love, pure and chaste from afar / To try, when your arms are too weary / To reach the unreachable star.

You set an impossible task, and gave more effort than could be reasonably expected and while not finding your answer you built a base that others that follow may build on. Did you think that if you became one of the giants who's shoulders we stand on that you could survive unaffected?

Thanks for the Herculean effort

GymBag

[parkinsonshereandnow in reply to Gymsack]

Thanks, Gymbag.

I still have hope to send a last barrage of mails to some billionaires all over the world, looking for "mecenas" or patreon:

"Know, Sancho, that one man is not more than another, if he does not do more than another. All these storms that befall us are signs that time will soon be calm and things will happen well for us, because neither evil nor good can last, and from here it follows that, evil having lasted a long time, good is already near."

Can a silkworm stop spinning?

Greetings

Jesus

[missingnewmexico]

Thank you, thank you for honoring your father, for writing and posting this. May our good Lord bless you!