I would like to find a neurologist who is willing to listen to my experiences and work with me, including prescribing carbidopa to take with mucuna. I have only had a horrible experience with the neuro I saw.
How did you find an open-minded neurologist? I am in North Carolina, if that helps.
"...an open-minded neurologist" is an oxymoron. 😀
that has been my experience as well, but i have seen some folks here who have found someone willing to prescribe carbidopa alone to take with mucuna
I am not recommending this. But, since my mucuna is over the counter, you can take some without your neurologist permission. Ideally you should have a neurologist that does not freak out about it, but you can experiment with it yourself. I suspect the majority of people self experiment on this forum with various things
Since they both have same active ingredient, I would wonder what you are trying to achieve. Be careful because the carbidopa will make the levodopa more potent if you take it near that pill, so you should use smaller dose than usual.
Perhaps those who tried this can let you know what result they had.
I live in Alabama, I am not the one with PD, my husband is, diagnosed in 2016 by our family doctor. However, there were almost no symptoms at that time, just a pinky minor tremor. Doctor prescribed Sinemet to confirm diagnosis. Hubby was still working at that time, and he wouldn't even remember to take his Sinemet. Fast forward, tremor increased left hand and we decided to confirm diagnosis at major universities (Mayo, Cleveland and Vanderbilt). They all confirmed diagnosis, but we decided to stick with Vanderbilt as were/are only an hour and a half away. The MDS at Vanderbilt was/is an amazing MDS, OUT OF THE BOX, who worked with us, knowing all natural forms of levedopa! We told him that my hubby was already on MP and that we wanted to keep it that way. He said "No problem, continue with MP" but I would suggest that you add carbidopa to facilitate natural levedopa entering the BBB. Unfortunately, the smart he is he went to Research, and he could no longer be hubby's MDS. Hubby was assigned another MDS, but she is a typical doctor, in the box, knowing only meds.
"How did you find an open-minded neurologist?"
I didn't, and I haven't. Even at the vaunted Mayo Clinic . Which for you would translate into the famous NC Research Triangle I think.
In fact the only time I have ever won one of those, the only time I really tried to do so in fact, was when I decided he was just an oppositional-know-more-than-the-patient-no-matter-what SOB, and I tried reverse psychology, insisting that I really did not want to have a certain medication when I really did want that medication, asking questions implying my doubts about it etc., and after a half hour of my Socratically "arguing" against it, and apologizing for wasting his time because I was so ignorant he had to spend precious time and effort explaining things to me, the session ended with his "eventually prevailing" recommendation and prescription for that exact medication and even got him to put a note in his chart about it to warn others potentially and to remind himself later of "how he had had to talk me into it." Spouse was with me and witnessed the whole thing. No, even with a "good" neurologist you're going to still have to work at it. In fact I wouldn't mind if a neurologist or two actually got to read this comment.
Mine is fantastic. We often swap research articles. He's a great believer in "if it works, go for it". Unfortunately for you, he's in Australia!
Seems a lot of "new" thinking coming out of Australia and new zealand . Not just on neurology but also re pain management
An "Open minded Neurologist" is an oxymoron! This is why we are all self medicating.
Hi we are in U K and feel the same!
Haha, I've just noticed that MB Anderson and I had exactly the same response to your OP!!
I live in France. I've had appointments with half a dozen French neurologists. Frankly, when I talk to them about Parkinson's, I have the impression they don't know what the hell I'm talking about! One insists on chewing gum during the consultation......
I'm trying to find the sweet spot with the B1 protocol. I'm seeing an Italian neuro in Genoa whose one of Dr. Costantino's cohort. He's great. I can have a real discussion with him and he knows what I'm prattling on about. I see a local neuro in Antibes for the regular stuff and my pet Italian once a year for the serious stuff.
Good luck with your hunt!
Dan.
Wow. I knew it was bad out there, but I guess I held out hope. I'd still like to know how some are getting prescriptions for just carbidopa.
::sigh:: I hate our health care system.
I am only recently diagnosed by my NHS specialist in the UK. He prescribed Co careldopa and when I asked about other self medication ( vitamins, minerals, natural supplements etc.) he simply said he couldn't prescribe them but if I wanted to try anything to carry on but to "run it by me first". So it's all down to who you consult or maybe where ( the usual post code lottery).
join a pd group and ask around.
I used to have the best GP. She prescribed just carbidopa for me so I could take it with mucuna. She knew I did a ton of research on something before I asked for it and was responsible. We had a good relationship. I’m sad she moved.
Yes. I think I need to try harder with my GP. Thank you.
Same here. Or at least one that seemed to care and try.
Join the Mucuna Pruriens for Parkinson’s on FB and read the group’s files particularly the Calculations pdf. Neurologists are taught to identify a pathology and prescribe a pharmaceutical. Alternative options are outside of their sphere of care. You might be able to find a naturopath, integrative practitioner, or Ayurvedic physician to guide you, but not a neurologist. My neurologist is open minded enough to accept my choices to use mucuna pruriens and b1 therapy. The information is available. You have to do your own research and experiment. Join the Parkinson’s B1 facebook group too and get the book by Daphne Bryan.
Just chiming in to say: my experience too. I'm trying a new neurologist in a week, don't hold out much hope.
Atremoplus - says they include carbidopa, L-dopa and vitamin E
I don't believe they are in the US, but I think they will ship here. It is expensive.
I know one person who gets a compound pharmacy to combine l-dopa and carbobidopa, I believe she got the persprection through a nature path doctor.
My husband is recently diagnosed with Parkinson’s and we are in North Carolina as well. What part of the state are you in? We are near Charlotte. His current neurologist is less than helpful outside of writing the script for Sinemet. We have heard about a neurologist here that has a reputation for being wonderful. It’s hard to get in with him, but I’m trying to convince my husband to at least go see him for a second opinion. Since we haven’t gotten an appointment with him yet, I can’t say from experience how he is. I do know that he is in a private practice and does concierge medicine-so you have to pay at least partially out of pocket. Are you anywhere near Charlotte?
Appointment with neurologist 
I need help in finding a neurologist in Sydney open to talking about Mucuna Prurience and green tea
Good neurologist for PD
Should I ask for a consultatuon with a Neurologist?
Wholistic Neurologist?
