Good help is hard to find.

[S70AWD]

In NE PA, hard to find any docs who really know much about PD. Few facilities offer treatment, pt, mental therapy, etc. My "team" approach consists of one neurologist who I see once every six months, and have to drive three hours to Philadelphia for that. Any input from the Wyoming Valley area? Wilkes-Barre? I'm 4-1/2 years into this journey. Age 67, female, still working.

[laglag]

Check out rocksteadyboxing.org

It's a non-contact boxing/exercising program strictly for PwP's (people with PD) that is like a support group. There are several affliates in PA and surrounding area. They may know of a separate support group also. I've been doing RSB for 11 years in Indianapolis. Go to the website & look up Find a Class and also watch some of the videos and read the testimonials.

BTW, I have a friend that lives in, and is from. North East, PA. She lived in Indianapolis for awhile.

[S70AWD in reply to laglag]

I've attended presentations by Rock Steady Boxing, and it sounds great. But it's almost an hour away, it's very expensive, and their class schedule doesn't fit with my work schedule. So, it's on the shelf until I retire and since I'm going on 68, I hope that won't be too far away. Thanks.

Our Northeast PA (NEPA) isn't a town, it's a region in the northeast corner of the state, below Binghamton, NY.

[laglag in reply to S70AWD]

I wish you the best and hope retirement is closer than you think.

I'm sure you've heard of NorthEast, PA? It, too, is in the NE part of PA. I visited once & I think it's near Westfield, NY.

[JohnPepper]

If you read my profile, it tells you what I managed to do to overcome many of the symptoms of Pd. I have lived Pd medication-free since 2002 and enjoy a normal life again. Give it a try, it costs nothing!

[grandmama16]

That's awful. So sorry. And too long of a drive. My hubby is 75 and has PD for over 5 yrs. On our 50th anniversary in 2013 his face was bland in the picture but since then meds have helped. At first he went to Univ of Utah because our son could meet him there and keep a file on him and support but it got to be too much of a drive so he switched to a Nuer. in town but I'm not too pleased as, like with you, he doesn't see him often. Says he's doing fine but I see changes in balance, getting up from chairs and speech. Dr. said nothing about his cough and chest congestion with wheezing. The U of U was very attentive but main Nuer has moved to Texas. Now, that's a long drive! Hubby will re-start an exercise therapy class for PD soon. I'll go with him. Last time I was able to join in exercises even tho we only paid for hubby, but the lady who started it has also moved away. She was so good. Maybe this time I can at least sit on reclining bike and read. I need some exercise as I have Fibromyalgia with nueropathy in hands, also late onset diabetes which might be caused by med. I take for Fibro and Depression which has plagued me since childhood and have tried all sorts of meds but don't want to go that route again. Also high chol. and blood pressure but BP is controlled. I might try Lipitor again for Chol., but don't want to...then go to CoQ10 which Dr. has suggested. It runs in my family. We also go to a support group for PD which helps. We're having a presentation on Rock Steady Boxing next time but if it's expensive we can't do it. Also, it's aways away. Good luck in finding something for you. M.A.

[S70AWD in reply to grandmama16]

Thanks for your response. When I hear about other people, I think I am lucky to just have PD.

The fee for RSB is set by the owner. In some cases it is very reasonable. In our case here, they have no competition anywhere of any type, so they can charge a higher price. I have been unable to locate any support groups or any exercise classes that might apply to pwp so I have developed my own routine.