Is there a standard reference guide for Parkinson’s medication that neurologists use to find the right medication for their patients ?If there is where will I find it or can anyone suggest what I should take in addition to semenit to improve my walking which I find difficult and painful. My neurologist said I should take repinerole but I am very reluctant to take this because many people seem to have had bad experiences when taking this drug. So what do I do now ? Any advice gratefully received . Thanks Geoff
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Gedge01
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‘My neurologist said I should take repinerole’...and why do you think, that anyone in this community could offer better advice than your neurologist? 😳🧐😳
I don’t think it’s a matter of better. The community can share their experiences and you go from there. Since we are all so very different it is wise to take all into consideration.
The neurologist should not be telling you to take anything. He should be giving you informed choices so you can decide what’s best for you. He hasn’t got PD he only knows the options available to treat it . Between you after discussing the options you should be able to make an informed decision
I take it the Sinemet is not helping, or not helping enough, and you are maxed out. It would be helpful to know how much Sinemet you are taking and why walking is painful for you.
I agree that dopamine agonists such as ropinirole are best avoided if at all possible.
High-dose thiamine is worth a look if you have not done so already:
Gedge01 You came seeking advice 8 months ago re Pramipexole. But there were conflicting entries on the effects of this drug. There was even a classic horror story, which probably frightened you away. We all react differently to drugs.
You probably did not take action then, the problem has persisted and you neurologist has another option, so you come knocking once again re Repinerole.
Let me give it to you straight: no one in this community can help you as they do not have a clue as to how you would react to any medication your neurologist would recommend.
To begin with they know nothing of your medical history. And this is just basic background information any one will need to advance a treatment option. Your doctor knows this history and yet he too cannot predict your reaction with 100 percent certainty.
However I sense you would like to get a good insight into what your options are. If that is the case, link below to a guide - Medications Treatment Guide To Parkinson Disease.
When I decreased agonists I couldnt walk. They help me keep mobile. I dont know that any other drug does this effectively. You need to tell family to watch you for compulsive behaviour if you start them.
Hi Geoff. I began ropinirole 14 months ago and I just had a couple of evenings of an hour or so of nausea. I was a little nervous before starting after reading the side-effects bit in the literature but in this regard, I was lucky. In fact, I wondered if the effect was wearing off and I contacted my GP a few months back about taking a higher dose - he reluctantly agreed for a week that I could go to 10mg from my regular 8 - symptoms did not improve but neither did I get any more side-effects. If you don't take the advice of your neurologist, I don't see why you should listen to me but the thing is, if you don't change anything - nothing will change. We are all on a search for the holy grail of P treatments. Good luck with yours.
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