has anyone heard about or tried Focused ultrasound?

[Mrsp12]

I found an article on a noninvasive procedure called focused ultrasound. The article states it is working with tremor dominate PD & essential tremors. I am going to look into it. Just wondering if anyone has tried it or has heard anything about it?

[Juliegrace]

If you do a search here you will find many posts on this subject.

[Mrsp12 in reply to Juliegrace]

I will….. Thank you

[MarionP]

Keywords for your search terms:

FUS stands for "focused ultrasound." It is like the surgeons scalpel, the tool.

The procedure they often use with that tool are ablations and the thing that is concerned with PD is called PTT, which stands for Palidothalamic Tractotomy (PTT).

[Mrsp12 in reply to MarionP]

Thank you

[Juliegrace in reply to Mrsp12]

PTT is currently only available at a clinic in Switzerland, not covered by US insurance companies or Medicare. There are two FUS procedures currently available in the US for Parkinson’s: pallidotomy and thalamotomy. The one you are referring to for tremor is the thalamotomy which is specifically for tremor.

[sarasummer in reply to Juliegrace]

I believe PTT is available now in USA too. Also now available in Australia

[Juliegrace in reply to sarasummer]

It’s in trials in the US, as far as I know, it has not been approved yet.

[Bolt_Upright]

You should join us on some of the twice a week Zoom calls MBAnderson is so nice to host. Almost every call has at least 2 people that have had FUS on the call. These calls are a super valuable resource. If you want to know anything about anything, odds are we have researched it and know about it. Everybody is welcome and will be welcomed.

us02web.zoom.us/j/833522248...

Thursdays, 7 PM – 8 PM-ish, US Central Daylight Time (GMT–6.)

Sundays, 11 am – 12 PM-ish, US CDT.

[Mrsp12 in reply to Bolt_Upright]

Thank you, I will try to check out this week.

[ghoegap in reply to Bolt_Upright]

Do you post these calls on youtube for those of us on the other side of the globe?

[Bolt_Upright in reply to ghoegap]

No, we don't record and post. I would think that would stifle conversation.

Where are you? We have people from all over the globe on calls. People in SE Asia usually join the Thursday call and people in Europe usually join the Sunday call.

[ghoegap in reply to Bolt_Upright]

Thanks, see the sunday time is possible. We are in south africa