Any updates regarding Dr Peter Tass and his Vibrotactle Gloves?

[esorhanna]

Just wanted to ask if anyone has heard anything recently regarding Dr Tass and his ground-breaking research in the development of his vibrating gloves. When I first heard about his research I was absolutely thrilled to see that such a non-invasive treatment for parkinson's was even possible. It seemed to be too good to be true?? I'm still holding out a little bit of hope that someday they will make it thru the FDA approval process and be available for purchase. If they are as effective as he claims, they will be a game changer, no doubt.

[india245]

i’m on his mailing list, and have had silence from them for over a year

[Fed1000]

There are so many people anxiously waiting for news on Peter Tass gloves, myself included, but we are all in the dark. The most skilled have made them themselves and it looks like they might work. I wrote to our excellent our member Michel a while back asking if it would be possible to contact Dr. Tass again for an update. Hopefully the Beech Band will bring us something useful but above all soon.

[esorhanna in reply to Fed1000]

Yes, hopefully.

[Ksbhutani12]

I followed up with Dr. Tass last week and this was his response "According to current timelines I will received gloves for local patients in February and hopefully soon after also gloves for remote patients." They are still in the trial phase.

[bigl62 in reply to Ksbhutani12]

Thanks for the update.

Have you used his(Tass) gloves? If so how did they work for you? Did your symptoms get better or go away? Are you still using the gloves?

LW

[Ksbhutani12 in reply to bigl62]

I was in fact the 2nd person to use the gloves in 2018 before they started the trials. I’ve been using it until last month when they broke down and I can’t get a replacement. To learn more about what it did for me, attached is a video

today.com/video/new-vibrati...

[bigl62 in reply to Ksbhutani12]

Thank you for your reply.

[Agate_17 in reply to Ksbhutani12]

I have home-made gloves with instructions and program on YouTube and GitHub . There are many factors to consider…quality of supplies, adherence to instructions, programming rev, and I think that program may be better designed for each individual.

My set up is a shot-in-the-dark, but is definitely worth trying. I can understand that designing the gloves for durability would be an issue.

[WinnieThePoo in reply to Ksbhutani12]

Kanwar. Will you be unable to replace them at all, or will you get one of the February batch?Have you noticed any effect from no longer being able to use the gloves?

Would you like any help making a set ?

[Ksbhutani12 in reply to WinnieThePoo]

Thanks that’s so kind of you. I can’t get a replacement as they are working with a different vendor now. I should be able to get a full set in February. Since being off the glove I’ll have to increase my medication dosage

[esorhanna in reply to Ksbhutani12]

That sounds somewhat hopeful

[Caddie49 in reply to Ksbhutani12]

Regarding the above comment “still in the trial phase” — does anyone have an informed estimate of when the trials may end… and gloves become available to PD patients ? I believe I viewed a Stanford video circa June 2024 where Tass himself directly responded to a question about availability timing — and he estimated “one year”. I’ve seen/read nothing since from Stanford regarding timing. Seems surprising that availability timing is a topic never addressed remotely well.

[WinnieThePoo in reply to Caddie49]

clinicaltrials.gov/study/NC...

The preliminary trial registered is scheduled to start in April this year and finish in October 2027. So maybe commercially available in early 2028?

[gaga1958 in reply to WinnieThePoo]

this link does not work (unless its my connection)

[gaga1958 in reply to WinnieThePoo]

oh you've just got the word "The" attached to the link at the end

[WinnieThePoo in reply to gaga1958]

I think I have fixed it now

The trial is number NCT05545826 and you can just google that

[esorhanna in reply to WinnieThePoo]

Thanks for posting the link to the "Vibrotactile Coordinated Reset Stimulation". So it looks like Dr Tass's work on the gloves is still on going in the trials phase, with this study ending in Oct 2027. I think that provides some assurance that the gloves are still possible.

[Agate_17]

I’m wondering the same.

[Ksbhutani12 in reply to Agate_17]

I was in fact the 2nd person to use the gloves in 2018 before they started the trials. I’ve been using it until last month when they broke down and I can’t get a replacement. To learn more about what it did for me, attached is a video

today.com/video/new-vibrati...

[esorhanna in reply to Ksbhutani12]

Sounds like you got about 6 years of use from them, I imagine the cost will be high once available to the public but well worth it.

[gaga1958 in reply to Ksbhutani12]

have you noticed any difference after being off the gloves?

[Ksbhutani12 in reply to gaga1958]

yes have had to increase my medication dosage

[Fed1000 in reply to Ksbhutani12]

I Anwar, therefore during these 6/7 years of stimulation have you always continued to take the medicines? The use of gloves is not decisive, despite the fact that Dr. Tass, during an interview, stated that the gloves were a turning point in the fight against Parkinson's.

[Ksbhutani12 in reply to Fed1000]

Yes I continued to take medicine, but it was about 65% less than I was taking prior to the stimulation. Thanks

[Fed1000 in reply to Ksbhutani12]

Thank you very much.

[WinnieThePoo in reply to Fed1000]

FedYou seem a bit fixated on this business of eliminating meds. You are always asking me the question. And always getting the answer that there is an interaction between the gloves and meds that has to be balanced. The gloves may not eliminate the need for meds but they substantially improve quality of life

Before the gloves kanwar was in a wheelchair (some of the time) after the gloves he ran the new York marathon

I'd call that a turning point

[Fed1000 in reply to WinnieThePoo]

Yes, thanks Richard, I have to convince myself of this. It still seems impossible to me. Sorry

[Jlmsp in reply to Ksbhutani12]

What was your dosage before they broke?