LOW TO HIGH PD SYMPTOM discriptions - Cure Parkinson's

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LOW TO HIGH PD SYMPTOM discriptions

Waxbeans profile image
5 Replies

I would like to ask this group about a general description of the symptoms of PD early diagnosis as it progresses. I am in a dilemma as to determining conflicting diagnosis PD or NPH which both have very similar symptoms I currently have what I perceive as low but progressing symptoms

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Waxbeans profile image
Waxbeans
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Grammy80 profile image
Grammy80

As a newly diagnosed person, I can share my personal experience. I've had essential tremors for several years, 15 or so on my left side and my chin. I'm 84 and have other health issues. Over recent months, the tremor became worse, involved my head shaking and change in my voice...very monotone, and I felt constriction in my throat plus a lot of phlegm. When I saw my neurologist in September, she said I'd 'graduated' (my term, not hers) to Parkinson's. She started me on Carbidopa-Levodopa...10/100, although I don't know what that means, except it is a low beginning dose to be titrated upwards. I attend the Zoom meetings of this group and am learning the terminology and await to see what unfolds in my life.

Yesterday, I visited my neuro-ophthalmologist, who gave me records to take to my rheumatologist, whom I was seeing after him. I noted in his records that he had made notes in 2022 of my tremors and gait—more than my chin. I find I am unconsciously rolling a fold in my clothing or just my thumb over my forefinger. After a few weeks, my tremors were better in the morning and worsened in the afternoon. A good sign, I'd say, that the meds were effective.

I feel like I'm in an alley, just waiting for the next thing to jump out. This forum is a great help to me. Nobody can predict your individual case any more than mine; we are all unique. I hope this helps to some slight degree. Not knowing is a big club, but here, you are not alone.💞

park_bear profile image
park_bear

Low symptoms - Foot dragging or heel strikes when unmedicated. Tremors occasionally, especially when stressed.

High symptoms - Unable to walk due to motor impairment, even when medicated. Tremor most of the time, causing overuse injury to the affected muscles and interfering with sleep. Difficulty straightening back.

michelagvolpe profile image
michelagvolpe

to be sure that is PD it needs a DatScan examen and try with levodopa, generally if it works it means that is PD.

Waxbeans profile image
Waxbeans in reply tomichelagvolpe

Tell ya what, I am currently on CL and I do not feel any clear relief or any defined on or off and that, as a result of a recommendation by my neurologist to get a MRI of my brain. That was confusing to say the least with the doc’s description that combined with his lack of time or motivation to sit or call and talk country boy talk as to what they think the MRI shows. All this and now thinking NPH , and that exact and accurate determination requires some scary processes but does provide hope!

johntPM profile image
johntPM

Normal Pressure Hydrocephalus seems to increase the risk of misdiagnosis.

See:

pmc.ncbi.nlm.nih.gov/articl...

"Parkinsonian symptomatology exists in addition to the classical triad of gait, cognitive, and urinary symptoms in normal pressure hydrocephalus (NPH) [1–4], and may complicate the diagnostic considerations [5, 6]. Radiology of the brain is essential to diagnose NPH [7], with typical findings of dilated ventricles without any macroscopic obstruction to cerebral spinal fluid (CSF) flow, often with signs of compressed cortical sulci combined with focally enlarged sulci [8]. NPH is a treatable condition; in about 80% of the patients, the symptoms improve after surgical treatment with CSF shunt [9]."

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