Celeste photopharmics trial

[Boscoejean]

I would like to know if anyone in this group is participating in this clinical trial

DB RCT for Specialized Phototherapy in Parkinson's Disease. (LIGHT-PD)

ClinicalTrials.gov ID NCT04453033

Sponsor PhotoPharmics, Inc.

clinicaltrials.gov/study/NC...

[docjleonard55]

I have been in the trial since the beginning of May.

[Boscoejean in reply to docjleonard55]

How frequently do you communicate with the researchers?

[docjleonard55 in reply to Boscoejean]

Unless there is an issue , and aside from the initial evaluation, only every three months. So actually it is only twice (or will be).

[TenaciousBlue in reply to docjleonard55]

I could certainly be wrong, but from what I’ve read I thought that light therapy would only help with non-motor function. Have you noticed any improvements in motor or non-motor function?

[docjleonard55 in reply to TenaciousBlue]

Actually, same as Edward, I have seen no effect in any way after 4 months. So either the light is totally ineffective , or I have the placebo (probably).

[edwardhopf]

I have been on it just under 2 months. Have not seen any improvement but it is a 50/50 blind test and knowing my luck I have the placebo light. They do 3 examinations of you first at the start of the test then 3 months in and at the end of the of the trial.

[Boscoejean in reply to edwardhopf]

thanks

[PDGal4]

I applied to this trial but they don't have a study doctor licensed in my area (Virginia)

[gomelgo]

Thank you for this. I just sent in an inquiry since I am in NY.

[Boscoejean in reply to gomelgo]

I hope this proves to be helpful

[gomelgo in reply to Boscoejean]

They are only focusing on drug induced dyskinesia. So won't work for me sadly since I do not take the drugs.