DBS and it's benefits

[MerckK]

My neurologist has recommended for DBS . As per the data ,I am informed that the success rate is 90%.Here also the neurologists are divided in two. Few says that medicine will continue even after DBS while other say no.

I would request those who have been operated for DBS to share their actual experience after the surgery

[Pauldmd]

I had DBS surgery in 2008. It made a remarkable difference in my life. I was on no medication until 2 1/2 years ago. From what I was told, not needing any medication afterwards was unusual. Like any other PD therapy, results vary from individual to individual and it can take a bit of trial and error to find the ideal stimulation settings. My one suggestion would be to find a surgeon with a proven track record of success. The leads in the brain require very precise placement and you don't want to be the first or second patient the surgeon is treating. If I can help in any way, please don't hesitate to reach out.

[MerckK in reply to Pauldmd]

Thank you very much. I don't know the country you are in . I live in India.

[Ctime in reply to Pauldmd]

Pauldmd, Do you know your H&R stage or were your symptoms pretty bad? My Neuro has also asked me to consider DBS but I have always seen it as a late stage thing. I am currently a H&R 2 to 2.5. My neurology team want me to increase my Sinemet and agonist doses but it gives me debilitating anxiety and agitation...

[jeeves19]

I differ from Paul in that my team claim that they know of hardly anyone who has managed to give up their drugs. I had dbs a year ago here in the U.K. it’s made a huge difference to my dystonia and bradykinesia but has messed up my voice quite badly too?

[MerckK in reply to jeeves19]

Thanks

[Ctime in reply to jeeves19]

Jeeves,

I thought you were feeling pretty bad when you had your DBS. Do you wish you had done it earlier?

Thanks

C

[jeeves19 in reply to Ctime]

No not really.i think it’s best to delay it as long as possible.it’s been good for me though I’m still surprised at my off time a bit and the amount of drugs that I still have to take?

[masishere]

DBS little over year ago. still on Rytary 195s x 3 per day. some improvement in walking but only back to where I was before the surgery.

[MerckK in reply to masishere]

Thank you

[MerckK in reply to masishere]

Thanks a lot..

[cjCardio53 in reply to masishere]

Did it help u with freezing? Walking , is it pretty normal for u now?

[masishere in reply to cjCardio53]

was on 245s...docs went to 195s 3 pills 3 x per day...also take amantadine

[MerckK in reply to masishere]

Thanks.

[Farooqji]

how many year of PD ? I have noted that DBS is n normally considered around 7 to 10 years after diagnosis