Have early onset PD, looking for natural ... - Cure Parkinson's

Cure Parkinson's

26,152 members27,457 posts

Have early onset PD, looking for natural supplements to live with this

gustavuks profile image
21 Replies

Thanks

Written by
gustavuks profile image
gustavuks
To view profiles and participate in discussions please or .
21 Replies
Sun_and_flowers profile image
Sun_and_flowers

Hi Gustavuks, have you read about the vitamin B1 (thiamine) therapy? Do a search in the forum, it's really interesting!

b1parkinsons.org/

Henk6 profile image
Henk6

Try PBM and MB , LCHF diet , 18/6 fasting , High dose VitC and VitD , MCT oils , Vit B , sauna and ice baths , cut out all sugars , alcohol , processed foods and Vegetable oils . Excercise till you drop .

Biscuit61 profile image
Biscuit61 in reply to Henk6

hi sorry don’t know the acronyms can you tell me what the letters stand for - always on lookout for my partner with PD for advice thanks

Henk6 profile image
Henk6 in reply to Biscuit61

You have to do your own research . I only point you to a number of options . Without convincing yourself which options you prefer and in which sequence , can you educate yourself . I am helping other people with their search and they all do their homework first . ( PMB stands for PhotoBioModulation , MB stands for Methylene Blue 🤭)

Biscuit61 profile image
Biscuit61 in reply to Henk6

thanks

Pixelpixie profile image
Pixelpixie

vigorous exercise only known way to delay progression. You may want to investigate HDT B1 Facebook. Daphne’s book is a must and FB group has guidelines

Biscuit61 profile image
Biscuit61 in reply to Pixelpixie

thanks

crewmanwhite profile image
crewmanwhite in reply to Pixelpixie

Exercise is certainly useful, but there are many ways to slow and/or stop progression by identifying the causes of YOUR symptoms and reversing those.

Pixelpixie profile image
Pixelpixie in reply to crewmanwhite

Not so easy. Myriads of causes and few identifiable solutions to go with them

crewmanwhite profile image
crewmanwhite in reply to Pixelpixie

Not really. The causes will be trauma or long-term stress, toxins and/or stealth infections.

All can be identified and, over time, resolved.

Pixelpixie profile image
Pixelpixie in reply to crewmanwhite

Do you include gene mutations in how that would work ?

crewmanwhite profile image
crewmanwhite in reply to Pixelpixie

Genes are switches and, while they set us up for predispositions in how we express stress, genes only switch on if we encounter triggers.

The triggers are stress/trauma, toxins and infections.

Genes can switch back if we remove or reverse the triggers.

TsaarPeter profile image
TsaarPeter

dopa mucuna

Biscuit61 profile image
Biscuit61 in reply to TsaarPeter

Thanks yes have been looking at that too

crewmanwhite profile image
crewmanwhite

You will find information about the causes and recovery strategies for all ages and types of PD here - rethinkingparkinsons.com/

Biscuit61 profile image
Biscuit61 in reply to crewmanwhite

Great will have a good read there

park_bear profile image
park_bear

I also recommend consideration of cinnamon healthunlocked.com/cure-par...

coffeewithcream profile image
coffeewithcream

Have you identified potential cause? For me having my amalgam filling removed has seemed to halt progression and reversed some symptoms. I also take some supplements - probiotics for gut health, taurine for leg cramps, turmeric to keep inflammation low.

lbrussell profile image
lbrussell

Dr Laurie Mischley is a naturopathic doctor who has been researching Parkinson's for many years. Her research asks, "What are the people who are 15-20 or more years into PD and are doing well doing in terms diet, exercise, supplements, meds and other lifestyle factors? Let's do what they are doing. Her MVP study has been gathering data from patients for 10 years and it's brilliant.

You can see her most recent talk on her research here. (Not sure why this video is starting at 41 minutes, but be sure to start it at the beginning.) youtube.com/watch?v=Jy7sJlY....

She also has a video series called PD School which covers every topic in detail, including supplements here: parkinson-school.com/courses/

cceelen profile image
cceelen

Dr Janice Hadlock has a recovery program, complex to understand but very hopeful, no drugs

If you have't started drugs, look at her book "stuck on pause" free download

Esperanto profile image
Esperanto

Not the only way, but ONE possible way...

Not what you're looking for?

You may also like...

Melatonin Seems To Outperform Three Common AD Drugs And Aerobic Exercise For AD In This New March 2024 Meta Analysis

In this new Systematic Review and Network Meta-Analysis, Melatonin appears to outperform Donanemab,...

Recording available for NSB4PD webinar with Dr. Sackner-Bernstein on "Why I am optimistic that we might now have a Silver Bullet for PD"

We were delighted to host Dr. Jonathan Sackner-Bernstein who we interviewed on the topic of "Why I...

Next NoSilverBullet webinar on 17th of June: Sackner-Bernstein, MD, on "Why I am optimistic that we might now have a Silver Bullet for PD".

I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm...

I Have Been Tempted to Write About How Great My Protocols Are For Awhile :(

Those that know me know that I have not been diagnosed with PD. I was diagnosed with REM Sleep...

From S of PD. Could all the benefit of B1 be the placebo affect? I think it's time for me to switch to benfotiamine instead.

"So it doesn’t look like there is a strong association between low thiamine levels and PD." "The...