It's live on Amazon my book "Running on hope", about how I have been managing my Parkinson's Disease for the last16 years, and the importance of lifestyle changes and it's impact on disease progression, with the detailed adventure of my FUS intervention on Switzerland. I wrote this book with the intent to help others, especially more recent diagnosed people, trying to leave some clues and to show that we can still have a fullfiled life with Parkinson's. It's a book about life and resilience, on living with a chronic disease.
The original version (Portuguese) won last year Editor's Choice Award for Best non-fiction book of the year. Available on paperback and Kindle format and for free on Kindle unlimited!
I would love to ear some thoughs from all those who already had the chance to read it 🙂
Mark, thank you for allowing us to get a glimpse into your life through your book. Much of it resonated with me, but the challenges faced by someone with YoPD are unique. You want to continue living your current life as best as you can, which sometimes seems to clash with a "sensible" anti-stress treatment plan. You mention John Pepper's fast walking as one of your biggest sources of inspiration, yet you choose to run. Running clearly ignites your passion, but it also makes you more prone to injuries and gives you less time to recover due to daily training sessions.
Your decision to undergo MRIgFUS in its developmental stage is courageous and will hopefully allow you to continue your running for hope for a long time. Hats off to your perseverance! The stealthy advertising for your book is granted to you… 😉🍀
Hi Esperanto, thanks for your response. Indeed John was one of the main responsables for me to begin to exercise, although that after some time on fast walking, I started to feel that it had become very few to me, so I jumped into running, and it was so challenging that changed my whole life. Thanks again for your words!
Hello! The costs at the time (3,5 years ago) were 33.000 Euros per side + voyages + hotels. I had a first assessement that was 1.500 Euros, and was deducted from the total amount of the surgery. Well, as its a recent technology, there is no info for how long it work. I have done one side so far and the treated side didn't had any visible progression so far. It did solved about 90% of my symptoms on the treated side and they still very stable until today, unlike my untreated side that has progressed. I always state that FUS is a tool, the important here is the target and the team experience, and by that time i think that was the only team to offer commercial PTT FUS in the world. So far it lasted 3,5 years, according with my surgeon, they believed i would be for life, who knows. What i can tell so far is that i had plus 3 years so far, and after 16 years on PD i still can live a quite normal life, so i feel quite afortunate. For more info and other testimonials, you can search for facebook group "Focused ultrasound for Parkinson's Disease"
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Came across this book while researching Wahls protocol on recovery from Alzheimer's and neuro degeneration. 
Summer reading
Next NoSilverBullet Zoom Webinar on 13 May: Live interview of Dr M Okun on "Practical strategies for living a happier life with Parkinson's"
New hope for Parkinson's Patients
