Humidity and heat

[Mimi828]

is anybody else bothered by the humanity and heat and does it affect their Parkinson’s? It certainly affects me. It makes me feel horrible, and my symptoms flare up like crazy. if it wasn’t for air-conditioning, I would not make it through the day. I just wonder how common is for other PWP’s thanks

[Juliegrace]

I’m lucky to live in a fairly temperate climate (Pacific Northwest), but with rising temperatures we installed AC two years ago because I cannot handle any heat. We seldom have humidity with our heat for which I am truly grateful. I believe intolerance to heat is common in PWP.

[00Mark]

I also find it hard to deal with heat. I have to avoid doing much on a hot day and have an electric fan blowing on me, including when I am in bed. 🥵

[Baron1]

Good Morning,

There are studies that have shown the effects of heat exacerbating and worsening patients with neurological disorders.

The one below concluded: "Heat sensitivity affects many people living with Parkinson’s disease, exacerbating symptoms and impairing their ability to perform activities of daily living."

See: link.springer.com/article/1...

I have been stating this for many years to my mothers doctors but they were not accepting this fact.

As my mothers carer, I have documented the daily temperatures several years ago and monitored her daily cognition, alertness, fatigue, etc, etc, etc. Noticing that when the temperature is above 21 degrees Celsius, she starts to act differently and hallucinate more.

That is why I try not to take her out when the temperature is above 23 degrees, because although the car air conditioning keeps the car interior cool, it is the movement in and out of the car temperature that I cannot control and that becomes the problem.

Keeping her body temperature within the accepted 37 degrees range and the room ambient temperature below 21 degrees has shown to be very beneficial in keeping her condition manageable.

Best Wishes

[Esperanto]

However, it can also be different. Finally, summer has arrived here with temperatures around 30 degrees. Of course, it takes some getting used to after the cold and wet spring, but anything is better than winter cold! We have rented out our cool stone house again for the summer and are staying uninterrupted at our campsite in a caravan and tent. You shouldn't be there inside now, but lying on a stretcher with a good book in the shade under the trees in the heat of the day is easy to endure and becomes addictive. All work shifts to the early morning and evening. You are outside from 6 am to 10 pm, sleep better, eat kilos of fruit and vegetables from the garden. You can't avoid the heat, but you can avoid heat stress.

Iceman promotes the power one can gain from cold exposure. In contrast, we can consider his counterpart as 'Sunman', representing the ability to embrace warmth and experience its healing effects. Sunman would embody energy, vitality, and rejuvenation derived from exposure to the sun and warmth, creating a harmonious balance between the power of cold and the power of warmth.☀️💪

Enjoy it, the winter will be long enough soon!

[Ponieboy]

I live in Texas and the heat and humidity the past several years has beeb brutal for me. I work outside for a living doing environmental testing and since my PD diagnosis I have noticed summers are kicking my ass. I am already up to 3 liters of water a day and luckily work let's me idle the truck at sights when it gets hot. 10 years ago it didn't seem as bad, I worked a summer with no A/C in my truck. Now I am finding myself close to heat exhaustion if I am out too long. I got up at 6am the other morning to mow the lawn and came in drenched in sweat. Literally soaking wet in sweat. So a big yup for me..

[LindaP50]

My husband gets wiped out from the heat. Even with a/c I put a cold washcloth on his neck, give him an ice cold Gatorade for electrolytes, make sure he stays hydrated and just rest. His legs don't work as well in the heat, weak. Thankfully, when the temps drop he's back to his normal self.

[jocelyng]

it’s brutal. I try to drink a big bottle of water to which I add a big pinch of Celtic salt before i go out. I find that if I wait until I’m actually thirsty, it’s too late. I also wear a large hat and just got a neck fan.

[Smittybear7]

I have a hard time in the heat and when it rains. Not sure if it’s barometric pressure or what. I have to be careful and hydrate.

[RBan]

yes the heat is terrible for my PD symptoms. It’s because our central nervous system is messed up. Can’t regulate our body temperature properly. And Add to that menopause flushes…. Good thing we only have a couple months of hot weather where we live.

[Jmellano]

temperature extremes, hot or cold impact me negatively

[caitilin]

Mimi828, I have a couple portable dehumidifiers in my living area & bathroom. They are an enormous improvement over just air cooling; but both are necessary, here in Florida, to keep the environment comfortable. I got the dehumidifiers through Amazon.