After reading a post here about benefits of using amino acid therapy, I have signed up and am scheduling initial consult.Does anyone here have any additional experience or thoughts about it?
Here is the site;
Here's the link specific to Parkinson's;
naturalsolutionsforparkinso...
Any invite would be appreciated!
Let us know how it goes
If you go to the first link and page down there are a lot of comments by people who have used the amino acid therapy.
True, but always like to poll on this site, as many have a lot of experience with different strategies.
Споделете моля след това
Means: "Please share afterwards" in Bulgarian.
Да
The other supplement used is Cysreplete 2 capsules per day
Yes plus Mucuna Powder 40% $ 248,35 and Pyridoxal 5'-Phosphate $22.
My thoughts on this: these supplements contain very high amounts of tyrosine and l-cysteine with what is supposedly the right amount of other nutrients in smaller amounts that are supposedly administered at the right level to increase the effectiveness of the tyrosine and l-cysteine. They are relatively expensive as supplements go.
IMO It also solves a tryptophan deficiency which is always good in PD.
I was trying to find out if there is a significant tryptophan deficiency when no levodopa is taken. Do you know?
I don’t know, but sleep disturbances, an early symptom of PD, could be an indicator of the tryptophan deficiency. But I really don't know.
tryptophan was one of the supplements in a protocol that my husband was given to address GERD along with B6, methionine, methylfolate, and melatonin- this was the result of a research study that also suggested adding betaine but he did not use the betaine - this was to be taken before bed and it was helpful
pubmed.ncbi.nlm.nih.gov/169...
From what I have read SIBO can be fairly common and responsible for some of the digestive symptoms and much to my surprise I also recently saw an article that suggested that if a person had SIBO and GERD the GERD might be caused by the SIBO
This is the usual description of the cause of GERD:
'Gastroesophageal reflux disease (GERD) is a condition that occurs when the lower esophageal sphincter (LES) relaxes or weakens, allowing stomach acid to flow back up into the esophagus. This backwash, known as acid reflux, can irritate the lining of the esophagus and cause heartburn and other symptoms"
"L-tryptophan, a precursor to melatonin, may be useful in treating esophageal disorders in humans. Melatonin is a hormone that controls sleep and gastrointestinal motility. Some studies have shown that melatonin can improve gastroesophageal reflux disease (GERD) by relaxing the lower esophageal sphincter (LES). Melatonin may work by:
Stimulating HCO secretion
Inhibiting nitric oxide biosynthesis
Increasing gastrin release, which stimulates LES contractility"
The 2 suggested supplements in the first reference I looked at are Taurine and Palmitoylethanolamide( um PEA). They have been suggested by people on this site, with a few people trying it.
Both my husband and I have been taking Um Pea for a few weeks now. Me for arthritis and inflammation, and my husband for PD.
No awful side effects, so far my hands are much less painful but the pain can come and go so difficult to say if it’s that or not.
I had just been researching Taurine so I’m going to add that to the list, someone here said it helped with sleep. I ll report back when I’ve tried it.
Thanks for sharing. I'm trying to contact them but I don't know if they will consider me. I ive in Italy
Dr. Hinz has an Amino Acid Therapy for Parkinsons, but it is very expensive. How much does this therapy cost?
I am not sure on cost, hope to find out after consultation, will post updates as I go.
This was why I decided against it after having a consulting with Dr Oler. about 500 per month ... for life
Gimelgo, after further research regarding supplemental treatment, it can actually run up to $900 per month. That is definitely not something I can sustain, no matter the benefits.
I'll keep plugging along and keep doing what I've been doing, hopefully with the new government initiative they will concentrate on a reversal approach and just not push more pharmaceuticals.
Appreciate the information!
I was on this protocol for 2 years early in my treatment for PD.The end result is that I figured that I lost two good years of better quality of life. The fact that there is no carbidopa in the protocol means that a lot of levodopa is not breaking the blood-brain barrier and this causes nausea. In order to manage nausea, you end up reducing levodopa intake and being under medicated. The cocktail of other amino acids did not help with the nausea and vomiting. I started to live again more comfortably taking Sinemet. Personally it was a waste of money and time.
Thank you for sharing your experience!
But Carbidopa depletes B6. That’s one of the main reasons the protocol exists.
Carbidopa possibly degrades B6, but that is not a reason to refrain from using carbidopa. A suitable supplementation with bioactive B6, P5P, is the simple (and slightly cheaper 🙂) solution. In my case, it appears that a low dosage of 3.5 mg per day is sufficient and has resulted in a miraculous improvement of my PD symptoms. Finding the right B6 dosage can be challenging. For that reason, I recommend testing your B6 levels every 3 months until your balance is restored.
I have been on AAT for three years at the beginning of my diagnosis. It worked for me pretty well. Unfortunately with progress of the disease the amount of Mucuna you have to take to get in to on state becomes unpractical. The other problem is it includes taking vitamin B6 in high doses, which could become toxic if not kept under check.
Thank you!
i hope you have plenty of money. I don’t think it comes cheap.
I like the idea of it. I don't understand why the information on an amino acid protocol is not readily available for those who want to try it.There are plenty of high quality supplements out there. It would be nice if you could shop around for what you could fit in your budget.
I have tried Amino Acid Therapy, but, my stomach could not stand for the supplements, I got nausea and vomiting, can't eat. I think not all people as me.
As it was stated earlier, just the intake of mucuna alone would be tough to digest, thanks for sharing!
Take it slow and careful. I haven’t been paying much attention to posts on amino acid therapy but I have a friend that tried amino acid therapy and it made him worse. He had to go off C/L and he got a lot worse. This was about 10 years ago so there could be a lot more research on it since then that proves me wrong. 🥊
"...medical journals, retracted all six of Hinz's articles on Parkinson's. The six were among 20 papers on various diseases and lab techniques retracted because Hinz and his co-authors failed to produce raw data and medical ethics paperwork after not fully disclosing his and his family's business interests in sales of the costly pills."
"It isn't the first time Hinz's theories and methods have drawn scrutiny and criticism."
In 2005 and 2011 he received warnings from the Food and Drug Administration (FDA) for marketing untested nutrients as drugs. Last year, the Minnesota Board of Medical Practice reprimanded him for false advertising, unethical conduct and fee splitting. The board restored Hinz's Minnesota medical license to full standing in November after he paid a $7,188 civil penalty.
"One doctor familiar with Hinz's work said the decision to retract the articles points to a longstanding problem — Hinz has never run a randomized clinical trial to prove his claims.
"I have seen no evidence, nor does my ... understanding of Parkinson's explain to me why [Hinz's] protocol would work," said Dr. Matthew Markert, a neurologist and researcher with Stanford University. But "to fail to provide the opportunity for a potentially superior treatment to undergo the scrutiny of randomization and blindedness is a tragedy, and harmful to all the people who would benefit."
July 2021
startribune.com/doctor-s-ar...
MBAnderson that is great information, and also aligns with what I've seen on their website. Seemed to be focused on taking their supplements. Thanks so much for sharing!
where are you going for your amino acid therapy?
I was looking into going to the same company, and was going to get a consultation until I found out supplement cost, which can be up to $900 a month! So I decided not to pursue any further.
$900/mon - a bit much.
PS. Personally, I put Hinz right up there with Anthony Williams (the celery juice fraud.)
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