WWP was diagnosed about 5 and a half years ago after responding greatly to 3x 25/50 co-careldopa within 5 days.Having been diagnosed as such it was, for some reason increased to 3x 50/100 a day as the continous treatment.
Any idea why the increase, when the smaller amount worked and as it is known, the smaller the dose, the less the side effects.
We are not slaves forced to obey the commands of our medical providers. If a smaller amount works satisfactorily by all means take a smaller dose. Levodopa medication is strictly for symptom relief and there is good reason to take no more than necessary.
often the neuros like increasing things whether or not it’s necessary. If less is better don’t increase. Or increase by 1/4 or half what they suggest and see if it’s better or worse until you reach your current sweet spot.
Plenty of people react badly to too much and have rigidity after each dose at about 90 minutes which will indicate it’s too much. But sometimes a bit more is needed. You need to run your own experiment but change things slowly and be prepared to go back if you feel worse.
Over time you might need to increase a little again and reassess the sweet spot. You’ll know better than the doctors when that is. If they prescribe too much I collect it and keep as a backup in case there is a problem with supply, but always use the oldest first so,it doesn’t expire. Then you can increase later too slightly and experiment if you want later on with out having to go back to them.
I was diagnosed in the summer of 2018. I use mucuna instead of Sinemet. I often only take one dose per day and sometimes I completely skip it on days when my symptoms are really mild. I really like my neurologist and he's very supportive of my use of mucuna, but he's always prodding me to take it two or three times a day on a regular schedule. I really don't understand why it makes any difference to him if I feel fine and can function well without it. I guess that's just what neurologists are trained to do.
Thanks for your reply. I'm currently on Sinemet 25/100 3x. I'm doing okay. I've been exercising and walking, trying to reduce my med and hopely stop it but I get stiff and slow whenever I try.I'm interested to know more about your Macuna therapy, is it powder or pill? What brand and dosages and where can I get it? How is it working for you? I like that you are able to skip it some days when your symtoms are mild. Thanks!
The Mucana never worked
Thanks for your reply. I guess not everyone react the same to med. I'm interested to finding out more about macuna because it was mentioned to be natural and effective alternative to sinemet (levodopa). Thanks.
Mucuna is just a natural source of L-dopa. It isn't really a "therapy," it's just an alternative to Sinemet. I take it because I tolerate it better than Sinemet. I take mucuna with a small amount of Rx'd carbidopa to help it work better. If you look at my previous posts (just click on my profile and then click on "Posts"), I've written about it before. Also search "mucuna" in the main Cure Parkinson's posts. There have been a LOT of discussions about it. There are lots of brands, and dosage depends on the brand and formulation as well as the individual. It just takes some experimentation.
Thank so much for the info. I'll search and read your previous post. God bless and have a good day.
Taking high-dose melatonin
Increased dose of vitamin C
The problematic 2nd dose of the day
Dosing schedule for c/l?
