Co-careldopa dose: WWP was diagnosed about... - Cure Parkinson's

Cure Parkinson's

26,583 members27,901 posts

Co-careldopa dose

Allypally49 profile image
8 Replies

WWP was diagnosed about 5 and a half years ago after responding greatly to 3x 25/50 co-careldopa within 5 days.Having been diagnosed as such it was, for some reason increased to 3x 50/100 a day as the continous treatment.

Any idea why the increase, when the smaller amount worked and as it is known, the smaller the dose, the less the side effects.

Written by
Allypally49 profile image
Allypally49
To view profiles and participate in discussions please or .
Read more about...
8 Replies
park_bear profile image
park_bear

We are not slaves forced to obey the commands of our medical providers. If a smaller amount works satisfactorily by all means take a smaller dose. Levodopa medication is strictly for symptom relief and there is good reason to take no more than necessary.

LAJ12345 profile image
LAJ12345

often the neuros like increasing things whether or not it’s necessary. If less is better don’t increase. Or increase by 1/4 or half what they suggest and see if it’s better or worse until you reach your current sweet spot.

Plenty of people react badly to too much and have rigidity after each dose at about 90 minutes which will indicate it’s too much. But sometimes a bit more is needed. You need to run your own experiment but change things slowly and be prepared to go back if you feel worse.

Over time you might need to increase a little again and reassess the sweet spot. You’ll know better than the doctors when that is. If they prescribe too much I collect it and keep as a backup in case there is a problem with supply, but always use the oldest first so,it doesn’t expire. Then you can increase later too slightly and experiment if you want later on with out having to go back to them.

1LittleWillow profile image
1LittleWillow

I was diagnosed in the summer of 2018. I use mucuna instead of Sinemet. I often only take one dose per day and sometimes I completely skip it on days when my symptoms are really mild. I really like my neurologist and he's very supportive of my use of mucuna, but he's always prodding me to take it two or three times a day on a regular schedule. I really don't understand why it makes any difference to him if I feel fine and can function well without it. I guess that's just what neurologists are trained to do.

Quentinkal profile image
Quentinkal in reply to1LittleWillow

Thanks for your reply. I'm currently on Sinemet 25/100 3x. I'm doing okay. I've been exercising and walking, trying to reduce my med and hopely stop it but I get stiff and slow whenever I try.I'm interested to know more about your Macuna therapy, is it powder or pill? What brand and dosages and where can I get it? How is it working for you? I like that you are able to skip it some days when your symtoms are mild. Thanks!

Allypally49 profile image
Allypally49 in reply toQuentinkal

The Mucana never worked

Quentinkal profile image
Quentinkal in reply toAllypally49

Thanks for your reply. I guess not everyone react the same to med. I'm interested to finding out more about macuna because it was mentioned to be natural and effective alternative to sinemet (levodopa). Thanks.

1LittleWillow profile image
1LittleWillow in reply toQuentinkal

Mucuna is just a natural source of L-dopa. It isn't really a "therapy," it's just an alternative to Sinemet. I take it because I tolerate it better than Sinemet. I take mucuna with a small amount of Rx'd carbidopa to help it work better. If you look at my previous posts (just click on my profile and then click on "Posts"), I've written about it before. Also search "mucuna" in the main Cure Parkinson's posts. There have been a LOT of discussions about it. There are lots of brands, and dosage depends on the brand and formulation as well as the individual. It just takes some experimentation.

Quentinkal profile image
Quentinkal in reply to1LittleWillow

Thank so much for the info. I'll search and read your previous post. God bless and have a good day.

Not what you're looking for?

You may also like...

Is it safe to increase dose of Co-Careldopa?

I have been on 25mg/100mg Co-Careldopa, three times a day at 8am, 2pm and 7pm since I was diagnosed...
Dobro52 profile image

What do I do now?

I got diagnosed at the end of October 2021. Once diagnosed I was offered a choice of sinemet or...

LOW dose thiamine.

Eighteen months ago, having been sent an article about Dr C, I began to take B1 as a 1x 100mg...
Dap1948 profile image

Dyskenisia on very low dose of C/L

hello is it normal to have some dyskenisia while taking such a low dose? I take 25/100 3x day and...
RS313 profile image

Finding the Right Dose of Levodopa

Hello, everyone. I am having a problem trying to find the right dose of Carbidopa/Levodopa 25/100....
cgreg profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.