the neuro told me (big smile, enthusistically) that if it was pd I vwould be restored upon taking these pills ( 100-25 mg pro levocarb 3x a day and one apa levocarb at bed time 200-50 mg)
several months later, I am not restored in the least.
I am just delivered these electric shocks like a cow prod I imagine.. can anyone identify these electric shocks? pharmacist said that "it's" working. i'm at a crossroads, I need to act..
neuro never warned me explained nothing.
Get proper diagnosis first so you can know how to address whatever it is.
do you get electric shocks, did you ever get electric shocks? I want to canvas for this symptom. am I the only one with this symptom?
You should see a doctor first and then canvas. Yes I have felt some electric shocks at times before onset pain becomes intolerable.
tks for reply. I started to feel these shocks, after I went on prescribed medication. 100-25 levocarb morn/noon/nite.
I find it difficult to take pills on a timely basis. these shocks come on when i'm late (an hour, sometimes two) they are withdrawal pain I suppose and i'm getting stronger more punishing "bolts". I can get them when I medicate too soon as well, it seems to me. is that how you would describe your experience?
At various times over the years I have had and still get pulses or a rush of 'electric' energy that surges upward and at times gives the old brain a real thump!
In the early days it started with a leg jerk from the right thigh and as time has gone on it usually manifests when there is an apparent tension of lower back and thigh muscles that effectively act like a battery.
That said, I now do floor exercises to decompress the spine, and exercises to relax thigh and back muscles; Having figured out that it is due to old injuries and squeezing upon the nerves effectively holding on to energy.
Destructive Pulse Syndrome (as I now call it) is one of the causes for my PD, and the root causes being leaky gut and muscle damage etc.,
I am sad that you are experiencing those shocks! Miserable!!!!! I had them for a couple of days and had associated them with a new muscle relaxer my GP had prescribed. I discontinued the medication and have had no issue since. I am currently PD medication free, so I can’t speak to those side effects. Hang in there!
tks very much, helps to know. I don't need this meds perhaps . he suggestred another medication but I refrained. I think the dose maybe low. maybe, maybe.
I would recommend drinking lots of water. I also visit a therapist 3 times a week for deep tissue massage, neck decompression, acupuncture, physical therapy etc
I gather from one post that it might be restless leg syndrome, I get it in both legs now, funny I know but I don't think it touches my arm. I feel in the joints recently where leg and thigh meet. thanks but massage won't do it.
Massage is the only thing that will work for me , plus exercises to decompress the spine so that the nerves like the sciatic can function.
Hope this helps - description of exercises I do here sites.google.com/site/beaux...
thx. you think you need calcium, maybe? I learned something valuable about calcium from glenn rothfield's atlas natural cures.
you know how difficult it is to upplement calcium, well we have a system that distributes this mineral where we need it and that removes it from whereit's not wanted. will reread and post.
No I get sufficient Calcium thank you.
interesting. a new one for me. destructive pulse syndrome is that what Stephen hockings had. first I heard he had motor neuron disease then pd. whose confused?
hard to read link will ask dweeb neuro about I.
strange medicine he practices, my 80 lb pooch slept on my errant leg and in the am I had needles pins of course, I have prexiting cystic something or other, (when I was in my 20's I had one removed from the back of my thigh (in office procedure) I just got a glimpse of it, but it looked like a piece of fat, very tough, it would of ad strangulation effect on vine. nerve? tissue. I also injured my spine couple of discs down towards center of back.
neither my gp or nuero have this history. they want my reaction to levocarba to tell them i have pd or not.
I think it's not pd. but l learned it's not als , because als kills you within two years.
Als does not kill within two years, although when nervous damage gets to a certain point or level things can deteriorate quite rapidly.
tks
You are welcome.
I know from a MRI that I have spinal stenosis , where a vertebra internal bone structure stopped growing, remaining fixed (aged around 10yrs when damaged in a accident): The restricted flow of nerve transmissions coupled with injured thigh muscle are certainly to blame and all part of my Parkinson's; along with the help of leaky gut & no doubt misfolded proteins.
I hope you get to the roots of your problem and find some relief.
Best wishes
Andy
motion disorder, due to organic failure. you should read my post on calcium, maybe you have what a chiro called a burr? never know, I don't trust conventional medicine.
No burr or additional calcium spurs, the injured vertebra was frozen to kill the pain by hospital doctors.
Too much milk, a pint and a half daily aged five may have kick started misfolded protein problem though ( my fault for being such a greedy milk monitor in school )
I take lactaid for milk "intolerance". had this allergy since 20ish, which is young. this usually happens to older folk. calcium, keeps coming up, heh.
I would get a second opinion from a movement disorders specialist, if the carbo/Levodopa is not working for you and you are continuing to have this “destructive pulse syndrome”.
Something is working for me.
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