proof I have been restricted on ADHD - Cure Parkinson's

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proof I have been restricted on ADHD

LAJ12345 profile image
16 Replies

I’m not paranoid they really have restricted me!

I have tried to contact the admin but no reply. I suspect my crime is suggesting natural therapies such as changing diet for eg 7 year olds and to question giving them antidepressants at such a young age before trying changing diet and exercise. Here is an example of the kind of thread I would reply suggesting diet/ exercise instead of drugs at age 7 that has had me banned:

healthunlocked.com/adhd-par...

”Think if the Zoloft as just for now, not forever. If you or he don't like how he is on it you can stop it. But, if it takes the edge off that would offer him some relief give it a go.

He is young and his little brain is growing and learning new things including how to manage his systems. When he is on medication - ADHD or otherwise - his brain has a chance to learn positive habits. Those will stick allowing for changes in medication in the future.

Think of medication as allowing him space to learn other tools to calm himself. Like an anti-nausea medication allowing you to eat foods to help heal you - I hope that makes sense.

um, no that makes no sense to me. The fact his brain is so young seems a good reason not to experiment with drugs on him without trying natural lifestyle changes first! The world has gone mad.

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MarionP profile image
MarionP

Well, having no dog in this one, just asking for curiosity and maybe a way to understand context, and of course snowing faorly well the limitations of what we can know about this website and each other (I think I am in your seven or eight or so, maybe a touch longer but that's rough area I think of hanging around on this website), have you any formal qualifications with child development, psychology, education, mental health, mental disease, family psychology, like those areas, just so we have some kind of a context with which to put your thoughts? What is your direct experience with ADHD please? Also, you're saying that you're being limited purely and solely because you're suggesting alternative health methods or alternative approaches to traditional medication and, for lack of a better word, drugging? It's sort of sounds like you're suggesting there is some sort of traditional orthodoxy and your suggesting something outside of the popular or traditional mainstream and getting a surprising dose of resistance or punishment or being shut down for it that really doesn't make very much sense why they would do that for simply discussing something, certainly not expecting blackballing in the situation, sort of like reflexive Overkill and that's what's making it seem very odd, especially cuz nobody's formally said so to you about it, you're just sort of being ghosted without anybody admitting it or acknowledging it and the behavior is clearly that ghosting, you're just cut off, which by itself is strange too, maybe the whole problem in fact... is that sort of the ball park? Sort of what's with the abrupt reflux knee jerk freezing out without even a comment about what rule you've broken or where you stand or what you could do about it or what criteria they would lay down for you to continue on as for normal or per usual? I'm sure you're not paranoid, if they're really doing it then that's going to be pretty obvious and I believe you. And wondering what's going on because if they're that kicked off at you they should be pretty easily willing to at least say what the situation is and why and what rules are expectations are etc for continuing? Most of the time when Police pull you over for speeding they explain what's going on rather than just pulling out their gun and shooting you dead without a word. Sounds all very Kafka-esque (The Trial).

And what kind of ADHD problems are we talking about in the first place? And I have never been over to ADHD part of the website so I don't know anything about them either. But now you've got my attention so it's time for me to ask a question or two to get the feel of things.

And maybe I don't even want to know about the ADHD behavior about any particular person especially if it's a juvenile... I get the feeling that you may have just simply wandered or stumbled out of bounds, and have put them in a position that legally they are doing and saying what they may be required to do by their civil (legal) authorities, which also includes not explaining much about it, or saying anything about it, if anything.

For instance, has it occurred to you that since you were talking about a juvenile, perhaps a specific case who is circumstances are subject to the formal interest of a UK Court somewhere... And that by creating a forum or allowing it's participants too, by commenting speaking or disclosing, putting the website in a compromised position in which they may be legally vulnerable for furthering some matter that could affect the status of that case or the welfare of such juvenile, and that since you and I may be anonymous to each other, neither of us nor anybody else using this website is unknown to the website, which might further make the website liable and some manner, and that knowing this or considering this, perhaps they know something you don't and perhaps the websites professional legal advisor has made a comment about compliance which they may have to respect by effectively stopping any possible future liability and tracks, which also might include not talking about or disclosing things, and that they can't help it if you don't get the hint to STFU?

In any case, it's probably good to remember that it's not our sandbox, they just let us play in it...and it's probably not a good idea to forget that if you're going to poop in somebody else's sandbox, you first have some rough idea of the likely results. Or as a mentor of mine from the 1970s used to say, "you don't have to say everything you know," which I then turned into my own version, "it's a good idea to know where you are."

🙂

LAJ12345 profile image
LAJ12345 in reply to MarionP

I have a son that had adhd symptoms, undiagnosed because the waiting list for specialists here was about 4 months. He dropped out of school, couldn’t concentrate/focus on what teacher was saying, couldn’t finish anything and was anxious. He went flatting, ended up eventually pulling out of a course he was doing, not eating, suicidal. He was drinking too much and started taking drugs. Lucky the course adviser emailed me and I helped him move home.

I got him to take Hardys den which have had clinical trials for kids for with adhd, and had been used by a friend of mine for her son from age 7-16 beginning under a clinical psychologist at Canterbury university in a clinical trial. (Julia Rucklidge). These were a life changer for her son which helped him get through school.

I also convinced him to maintain a strict diet and do lots of exercise, get up early in the morning and not look at his screen too much. He was pretty desperate by that stage and agreed to try it and started getting better over the next few months. Last year he did a full year at uni and passed with mostly A grades.

I have replied to people with their kids going though exactly the same and told them what works for my son.

I also have my husband with PD of course who has been prescribed various SSRIs with severe side effects. That makes me worry about young children of 7 who potentially might have side effects being given these as a first thing before life style interventions.

this is the kind of stuff I have posted

Yes, they just ghosted me, one day I couldn’t post any more. I emailed to ask why and no response. It kept saying “post failed” but today it has this big red banner when I went on the site.

I haven’t said anything radical.

I have suggested videos of Julia rucklidge on mental health and diet . She teaches psychology at the university and does research on mental health. I have also done her mental health and nutrients course and got an endorsement on edx for this course.

youtube.com/watch?v=3dqXHHC...

it does seem they are very anti nutrients or diet. Maybe they think parents will be shamed or something for feeding their kids unhealthy food? If it were me I would just want some one to tell me what worked for them. Apparently parents aren’t allowed to decide for themselves. I have recommended people go to Healthunlocked for pd, but I certainly wouldn’t advise anyone go to the adhd site. It has a whole different vibe.

MarionP profile image
MarionP in reply to LAJ12345

What is "flatting," I do not know that word. What is "Hardy's den" ?

What age is your son now?

Yes it pretty much seems like the website feels they are in a situation where they pretty much have to simply shut down your conversation with certain particular persons, with no discussion or acknowledgment, and are also not at liberty to utter even one word about it. I would bet their position may well be "We'd love to explain, but we can't even do that."

LAJ12345 profile image
LAJ12345 in reply to MarionP

Flatting is going to live with a group of kids together in a house. He is now 21. He was 19 at the time but is now doing well.

I feel they are pro drugs. They don’t like any other suggestions. I feel it is a scary thought putting 7 year olds on brain altering drugs and making them patients for life, especially if there is a natural alternative.

Hardys den is the nutrients formulation Julia used in the clinal trials run on multinutrients. It’s the one that helped my husband.

LAJ12345 profile image
LAJ12345 in reply to MarionP

I’m not actually sure exactly when they turned me off. I found for a while it was saying the post failed. But I could go back later and it would work. Or a post I would make wouldn’t let me edit it as it would fail. But later another post would work . And I never had the problem on the pd one. So I started thinking maybe it was just the adhd one that was stopping me. Then today the big red banner for no reason. I haven’t tried posting on it for a while once I had wasted my time a few times answering something that wouldn’t post.

there is never personal details so I’m not sure about your court case theory.

Often it is a parent who sounds desperate asking for help for a kid of my sons age who was doing exactly the same things so I did what everyone else does and offered advice as above. Other people not medical experts were recommending lists of drugs and they weren’t banned. Only me recommending healthy lifestyle.

MarionP profile image
MarionP in reply to LAJ12345

The personal details are contained in the multitude of header and database-linked realtime data embedded in the website, internet providers, and trackings placed on your computer that are done for all computers participating in internet activities by governments, commerce, and exploitative bad actors whether you know of them or not. This data is then analyzed and mined for legitimate commercial and nefarious value including sold to information brokers who then re-sell it or have contracts extracting the data and then used to compare to other known databases, both licit and illicit, that render you, your identity, your activities, your behavioral patterns and your full identity for commercial, civil, forensic and criminal purposes whether you know about them or not. This is the 21st century. Having the ability to know exactly who you are, they might be placed under legal responsibility for something a counterparty might hold them accountable for for some sort of legal damages by revealing, or not revealing, your identity, location, activities, all the things that can be constructed with the information they have, the seeking of which is also entirely part of commercial, capital enterprise for fun and profit including law firms who like to earn money to pay for things they want. Again, this is commonplace and has been for several decades. In fact its very freedom to exist and be useful generally depends on you not knowing about it. In a relatively socialist country like England, where this company is based, and governed further by the very much communitarian legal authority the EU, the reality is that anyone with potentially deep pockets is a target for anything that may promise remuneration or court governance...and children's issues are of paramount interest to such civil authorities. Again, this is the 21st century and because of such electronics you are essentially an open book, whether you know about it or not. The problem then can be that since a commercial venture knows so much about you, they could be held to some extent liable by someone wanting or needing to exploit them, including legal authorities interested in what happens to minors...abused and neglected children, children who are trafficking victims, etc. Happens all the time. That you don't know of it means that you have been blessed and sheltered or have not had the fun opportunity to have yet been tripped up by it, but commercial enterprises find this is a daily aspect of business and life today. Believe it, and consider yourself fortunate that not knowing has so far not happened to cost you much (that you know of). and enjoy that luxury to the fullest while you have it. Have you never heard of the phrase: "If the product (service) is free, then YOU are the product." ?

Yes, when you had mentioned that the world has gone mad, I think that about accurately covers it. I call it "modern problems" because I don't have any good other term for it. Somebody is afraid somebody else will take your advice and if things don't turn out perfect then somebody will catch hell or made to pay for it with their money or their freedom because they could be held accountable for not stopping them from listening to you. That sounds mad enough, doesn't it?

Sometimes I wonder if we have made much progress at all from when we were monkeys and the main things of concern were fleas and where to get a good banana.

LAJ12345 profile image
LAJ12345 in reply to MarionP

Yes I know that but I can’t see how my advice to a parent who has a kid who is yet unmedicated to try eliminating junk food and processed food and to do more exercise would be illegal while other parents are “prescribing” a whole list of meds.

MarionP profile image
MarionP in reply to LAJ12345

I thought we already agreed that the world is mad. We settled that one. Did you have a new question? :)

MarionP profile image
MarionP in reply to MarionP

Did you ever hear the Joe Walsh song "You can't argue with a sick mind" ? I think that about covers it.

LAJ12345 profile image
LAJ12345 in reply to MarionP

😄

MarionP profile image
MarionP in reply to LAJ12345

Ok, I had a look at the website owner (which I surmise from reading their onsite material that they are probably a typical far left PC cancel culture special interest cult activist group who lease website access presence and service space from HU). Looks very much like a typical intolerant organization preaching one thing but practicing a dual standard on anything it finds triggering, or maybe some of its desperate members do because they are so stressed by whatever they are dealing with. If you agree with them on something you are all good, and if you have something different to say on a case by case basis you are all bad...or as we say in the professional psychology business, an organization displaying evidence of a personality disorder (or attracting extreme or desperate people, which amounts to the same thing in the behavior it must deal with and itself emit). They say they are evidence based but your experience is also a form of evidence, so there is the double standard. Who knows, maybe somebody makes their living this way and so has an inherent conflict.

Go back to what I said above about Joe Walsh's famous song and forget about making an impression of any kind, perhaps some member or parent has decided you are evil or some administrator, while not disagreeing with you in principle, has decided you are not worth the trouble of letting you hang about because other users flip out whenever you say anything they don't like. Goes back to "know where you are and whose sandbox you are playing in," but they are within their rights. What is this strange rigid need to have them make sense to you, because they aren't going to. Maybe it's a matter of principle, legitimate disagreement in this case, or maybe they just find that they make better money off of dealing with you this way than tolerating you. Find some other rubber band to gnaw on is my advice, this one is going to wear down your jaw until you need drugs yourself. Just agree to disagree and go make a snack.

LAJ12345 profile image
LAJ12345 in reply to MarionP

😆 yes.

Bolt_Upright profile image
Bolt_Upright in reply to MarionP

Today the popular saying seems to be "Read the room". :)

LAJ12345 profile image
LAJ12345 in reply to Bolt_Upright

Yeah. But I think the poor parent who wanders in expecting help doesn’t know what the room is and snap, they are ensnared. Or the poor kid is made a patient for life.

MarionP profile image
MarionP

Well it's either about a juvenile whose case is somehow involved with or supervised by a court, or maybe somebody who's involved with some other person who's involved with the court, material evidence or something like that... Or an adult who is under some sort of civil court supervision including some form of mental commitment or review... In other words there might even be parties other than the kid whose case or situation could be influenced or affected or impacted in some way. But bottom line is not probably the point you are making, the point you were making sounds like it has a lot of interesting aspects to it.. doing anything as a form of experimenting at some level, even prescribing medication is a form of experimenting in the case... The matter is rather about who has the right to make the point and do the experimenting. I'm guessing it's a juvenile court or family Court matter...

What is this Hardy's den anyway?

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