Is anyone else trying Gocovri for better ... - Cure Parkinson's

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Is anyone else trying Gocovri for better sleep?

JAS9 profile image
JAS9
5 Replies

I've been trying it but I've decided to stop because it's just not helping me. But before I do I thought it would be smart to see if anyone is having better luck. It's too bad it didn't help me because I get it for free and it' costs most people (here in the US) about $4000/mo. But oh well. If nobody has any ideas about ways to make it more effective, I'll just cancel and send what I've already gotten back.

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JAS9
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Bolt_Upright profile image
Bolt_Upright

GOCOVRI® (amantadine) helps treat dyskinesia and OFF time in people with Parkinson's disease.

lenamm profile image
lenamm

Amantadine - the non-extended version gave me 100% insomnia and it was horrible. Severe panic attacks from lack of sleep. Worse drug I have ever been on.

YOParky profile image
YOParky in reply tolenamm

Same here

DianeF profile image
DianeF

I found that if I took it at bedtime, I would wake up after exactly 2 hours and then be awake the rest of the night. So now I take it when I get up to use the bathroom around 4 am, then go back to sleep for 2 hours and am up by 6. It really does help with dyskinesia.

JacksMomTX profile image
JacksMomTX

Gocovri gives me hallucinations & crazy dreams at the prescribed dosage (200mg) but my on time is better with it. At a lower dose (137mg) I see texture as very highly defined which is probably the base of the hallucinogen ramp for me..

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