We were delighted to host Dr. Simon Stott again in what is becoming our regular start to the year's presentations. And what better way to start than to hear Dr. Stott's main "PD research takeaways from 2023 and research results he will be looking for in 2024".
It is available now on our YouTube channel so please take a look:
May I ask you, why are we still talking about a cure for PD when we know that we can overcome it by doing FAST WALKING?
I know that some people are either unable or are unwilling to do the fast walking and it would be nice to have a cure.
Ity is my opinion that it is not in the financial interests of the medical world to find a cure for PD and, as such, it will never happen!
Why then is anybody not telling the whole PD world that if they are prepared to put in the effort, they can overcome the PD symptoms, as I have done, many years ago?
I was diagnosed with PD in 1992 and now, 31 years later, I show no signs of PD, providing that I do not stop doing the FAST WALKING, which I have had to do for other health reasons, but am back on track again now.
Hi John I agree that it makes no financial sense for big pharma to find a cure. I have heard one or two on this forum criticise you but I read a chapter about your story in a book by psychiatrist Norman Doidge which was very positive about your approach and made sense. I also look at exercise as a means to slow prògression but not halt it (it still seems to slowly advance).
Can you address for me what someone suggested the other day I.e. that you don't have idiopathic parkinsons?
Either way I do not doubt that your approach can have big benefits even if it doesn't stop progression totally.
I am 89 years old and have had cancer and other health provlems for the last 32 years, which have stopped my walking. That's whenthe PD starts to take over again. SO, YES I DO STILL HAVE PD . I HAVE BEEN TESTED BY TWO NUROLGISTS AND BY TWO NORMAL DOCTORS AS WELL!
The medical world (Big PHARMA) will do anythinf to stop me doing what I do. I don't blam them, it is their loss and our gain!
John it is not fair how you view people who are trying to do their very best to find a treatment or any relief for PD. Many people do it out of passion and are not affiliated with the ´bad’ pharma, supplements, books, and courses industry. You know very well after all these years that there are different forms of PD. It seems you developed a kind of chronic stress-related PD, because as I read in your book, you yourself believe that the cause of your problems was mainly work-related: low self-confidence, your own business, 16 hours of work, less than 4 hours of sleep. Too busy to be sick, not able to cope in your own job.
The remedy you described: The right meds to begin with. A lot of time. A great deal of effort. A positive attitude. Management of harmful stress. The good sense to have given up your stressful job. Changes to your lifestyle and… also exercise, in your case fast walking.
Funny enough, I have gone through almost the exact same experience as you did at the same stage of life. The drama of the diagnosis that made everything even worse. The medication that didn't work. By making similar lifestyle improvements, I am currently medication-free and now only take a low-dose vitamin B complex, vitamin D, magnesium, 1 mg melatonin (to please Art), propionate to combat my neuropathy and exercise, but no fast walking!
We both were fortunate to have entered a stage in life where we could make those adjustments relatively easily. I understand that it is very different when you are ten years younger and retirement seems far away.
John, you inspire me to keep going for another 30 years, but please tell the whole story to the right audience. 🍀
That was well over ten yers ago when I was in my seventies. I turn 90 later on this year and I am still walking, but have had a couple of falls. I now use a 4-wheel walker.
Chronic stress-related Parkinson's disease is as far as I know not (yet) seen as a category. That is the case with genetic factors, age (although I would rather categorize that under physical causes that contribute to the damage to dopamine-producing cells in the brain) and environmental factors. But if there are hundreds of therapies that have a beneficial influence on PD symptoms, then I also estimate that the absence of these can contribute to the onset or faster development of PD. So indeed, as many PWPers, as many 'types' of PD.
However stress is a trigger for many of us. For me, perhaps also for you. When I then read the recognizable story of John Pepper, alarm bells go off for me, as they do for many of the 'almost' cures of PD mentioned here in CP. The pattern is always the same. First, a hook is sought that is interesting for the parkie or his environment, speed walking, Jesus, Qi gong, a special supplement or diet, but the context and other factors are omitted. Understand me well, that hook is important. It gives you a purpose, peace, anti-stress, better lifestyle, and that contributes (often unconsciously) to the possible underlying cause of PD such as chronic, occupational, or traumatic stress.
Whatever the cause of your disease is, consciously searching for the possible cause can lead you much more directly to an appropriate therapy. If stress is the cause, then speed walking like John can work wonders, but so can mindfulness or Qi gong. Those supplements, that diet, that intensive training, other medication are important and help you improve your condition, but stopping that work, paying attention to yourself, learning to say no, expressing your émotions , asking for help from family and friends, and having fun are probably more important initially.
Again, I have it easy, we are not well-off, but with that small pension, living in a beautiful place in a safe country with 'free' medical care for PD, enough to lead a normal life without financial worries and... no stress! 🍀
Thank you for the the thoughtful and thorough response. As I have been learning about PD, I realize everyone is so different. It seems very apparent that each person's best treatment can be so different than the next person.
By nature I have always loved to encourage people.
I would be very careful as I think we all should in sharing something unless we are sure it works.
We all need to be wise and discerning with what we read.
It's simple John. You can't. You have proved that over the years. Hundreds, maybe thousands, have said "Amazing. Thank you John"
Not one of them has posted about their PD reversal 5 years later. If fast walking worked you would have a web site full of a thousand post 5 year testimonials
How many do you actually have? 31 years of posting arrogant whinging bullshit on forums like this, thousands of books sold on Amazon. Verified 5 year testimonials - NIL
Come back with 100 proper verifiable testimionials,
Like your neurologist told you. you dont have PD
Exercise is a good thing. And fast walking is good exercise. But the idea it reverses PD is unproven
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