Rytary - update

[MissRita]

Hi all! I hope everyone is well!

? On Rytary - anyone have the following: constipation, gut distress/distention, massive insomnia, and heart racing?

I’m finding that I have to take 2, plus 1 capsule of Mucuna.

Interestingly enough and something that none of my doctors see as common is anal/rectal and gastric neuropathy. Any information is helpful!

[Tmarsella]

What strength is your RYTARY? I start with MUCUNA at 3:am ish. And 195 RYTARY around 6-7am. Then RYTARY 145 3-4 hrs later, Then MUCUNA when needed before 3rd 145 around 2- 3pm then again around 6ish. Also B-1 thiamin , D-3, Mg, ALC, NAC, OM-3 with LND and 10 mg of Meltonin and ASPIRIN 81. L-serine and MANNITOL in am. No constipation. Dx 4 yrs, age 80

[MissRita in reply to Tmarsella]

Rytary 23.75-95 MG, i’m supposed to take up to six a day and I can barely take 4 because if I took any more I would never sleep. The insomnia and constipation are just brutal.. it’s bad enough that it makes my blood sugar dip and my blood pressure rise.

After some more research I did find out that levodopa carbidopa has a mild stimulant to it and there in lies the reason why any LC always makes my body tremor worse. .LC and Mucuna both make my heart race and give me a boost but quite frankly it’s like taking ADHD medication.

[Hikoi]

What is gastric neuropathy?

[MissRita in reply to Hikoi]

Well think about neuropathy in your feet and your hands and now transfer that to the gastric portion of your body including the anal rectal area. It’s not fun.

[Hikoi in reply to MissRita]

I think you are talking about what is common in PD - and I know as gastroparesis. It may be knon by both names or it may be different. I have trouble with the muscles not working in my gut but havent neuropathy type symptoms which I describe as tingling and numbness in my feet.and hands.

[MissRita in reply to Hikoi]

I do not have gastroparesis and I’ve been tested for it. I thought that was the case originally many months ago but after being tested for it and looked at for it they said I do not have it.

[Hikoi in reply to MissRita]

Interesting! I have self diagnosed so how do they test.?

[park_bear]

High-dose thiamine restored my normal gut peristalsis. I discuss that and other things to remedy constipation here: healthunlocked.com/cure-par...

Also some useful comments.

[MissRita in reply to park_bear]

Thx!!

[661marina]

About your gut distress: Have you been on any acid reducer prescriptions recently? I have those symptoms after being on Prilosec for about 6 months. It ended up being SIBO. If you don't get enough acid to digest your food, the food will ferment and rot in your small intestine. It causes horrible issues.

[MissRita in reply to 661marina]

Omg maybe!!! I’ve been taking papranizole which is the generic version of Prilosec. I’m going to try and see what happens. I wondered about that! Thank you so much for suggesting it.