Recording now available of NoSilverBullet webinar on CUE1, a non-invasive wearable device to reduce slowness and stiffness in Parkinson's .

[Michel0220]

Presentation by Lucy Jung, CEO of Charco Neurotech, producer of the CUE1, a non-invasive wearable device designed to reduce slowness and stiffness in Parkinson's patients.

youtu.be/QIsYmQai_pY(Not working as expected?)

[Smittybear7]

I'll be interested in learning more. Thanks for sharing!

[MBAnderson]

Thank you

[CuriousMe12]

I was a little confused by the CUE1 branding as there is a current heavy study underway in the UK NHS to trial a CUE band.

CUE band is to stop drooling and worn on the wrist. The study is posting out wrist bands to keep. They only want the data back.

parkinsons.org.uk/research/...

This CUE1 is a different product and private company. Its worn on the chest to help movement.

They both seem to use vibration technology.

I can't find any independent study data for CUE 1 to prove it's worth. Though Addenbrooks has recently bought 10 to trial with some of their patients. I look forward to their reported findings:

cuh.nhs.uk/news/high-tech-d...

[Michel0220 in reply to CuriousMe12]

Thank you for this. The CueBand is an entirely different device. Had not heard about it until now.

[JayPwP]

Any idea if CUE1 improves speech?

[Michel0220 in reply to JayPwP]

Hi Jay. This is covered in the video and Q&A. Someone asked that question and Lucy responded positively.

[JayPwP in reply to Michel0220]

Thanks. Will see the video today evening

[Pixelpixie]

anyone know if this is available in US?

[Despe in reply to Pixelpixie]

This is our monthly update on its availability in the US.

Dear . . .,

Thank you for signing up to the CUE1 waiting list on 12 September 2022. Unfortunately the CUE1 is yet to be available in United States. We are making efforts to bring your CUE1 to you and will let you know once it is available.

Name:

Signup date: 12 September 2022

Email address:

Country: United States

Postcode:

If any of the above information is missing or incorrect, then please click here to update your details. This will not affect your position on the waiting list.

Please note that regulatory processes are in place for the safety of the citizens of the country. They involve reviewing extensive technical documentation, clinical data and manufacturing processes associated with the device. The time of completion is unknown as it depends on a number of variables such as requests for additional information, clarification, or modifications to meet regulatory standards.

We will do our best to bring the CUE1 to you, and will update you once this is possible.

With love,

Team Charco

[Pixelpixie in reply to Despe]

Thank you. I hate to be cynical but I guess there’s no political advantage in getting it here

[Despe in reply to Pixelpixie]

Big Pharma has to approve it, not FDA. . . Big Pharma is the global cabal who decide about everything!

[WinnieThePoo in reply to Despe]

Do they still have the big Persian cat?

[Michel0220]

They hope to have FDA approval by the middle of next year and to start distributing in the US by the end of next year.

[John_morris71 in reply to Michel0220]

Pardon my language, but the wretched FDA is sitting on its arse, and doing nothing. CUE has approached the FDA a long time back for approval and there is no progress. Given the reciprocity between FDA and European Agency, one would have assumed that the FDA approval would have been a slam dunk.

[jeanette2372]

Thank you so much for sharing this. I have put my name on the waiting list. I hope it gets approved in Australia.

[Michel0220 in reply to jeanette2372]

Thank you Jeannette. You are most welcome.

[Zella23]

we missed the Silver Bullet so will catch up with the recording. My husband has had his Cue1 for nearly a year now. He doesn’t get freezing but it has enabled his walking pace to remain pretty consistent. Mostly wears it everyday, we’re in the South of France at the moment so hasn’t used it much here as we re worried about it accidentally going in the swimming pool. Doing some aqua aerobics, swimming and walking.

[CuriousMe12 in reply to Zella23]

Hi Zelĺa Has it improved your husbands walking gait ?

Can I ask how much it cost ?

[Zella23 in reply to CuriousMe12]

It seems to keep the walking gait and stride more consistent. When he used to walk without it stride and gait varied. It can still vary and require concentration but I have noticed he often now swings his arms naturally without noticing when walking. He gets into his stride faster. It cost just under £300 I think.

[CuriousMe12 in reply to Zella23]

Thanks for sharing Zella

[Michel0220]

Thank you very much for sharing your experience Zella. I wish you both a great holiday!

[Zella23 in reply to Michel0220]

Thank you, Michel having a great time, so far no dyskinesia! Must be more relaxed, and not so much focused on symptoms although as we all know PD symptoms are variable to say the least!

[Farooqji]

I have been using it for the last one month or so with no apparent benefit