Started Ambroxol this week: Trials dosage... - Cure Parkinson's

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Started Ambroxol this week

easterners profile image
31 Replies

Trials dosage is about 1260 milligrams/day. The previous phase experiments determined that this dose, and not less, raised enzyme level enough to become effective is cleaning out toxic clumps. I started Ambroxol at 17/day x 75mg (1275mg) tablets this week. I feel good so far. Hopeful. Fingers crossed. Wish I was in UK so I could participate in the study so this would be free, but it's also good to know I'm not in the placebo group.

Currently in Europe and ordered it via online pharmacy.

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easterners profile image
easterners
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31 Replies
limcheeese22 profile image
limcheeese22

your daily dose is 1275 per day or accumulated 1275 for 17 days?

Henrymor profile image
Henrymor in reply to limcheeese22

Would you please tell me which online pharmacy? I would like to take it. Thanks so much.

easterners profile image
easterners in reply to Henrymor

the places I ordered from do not ship outside of Poland. However, I did see many listings on madeinindia.com website. Which were cheaper than Polish prices. If I was in the USA, I would try there. Good luck to you and all of us.!

easterners profile image
easterners in reply to easterners

i got the name wrong. Indiamart.com

easterners profile image
easterners in reply to limcheeese22

17 capsules/day. 6+6+5.

park_bear profile image
park_bear

Please let us know your result!

Todd-pw profile image
Todd-pw

good luck. looking forward to seeing your findings. i hope you get positive results

easterners profile image
easterners in reply to Todd-pw

thankyou!

Baron1 profile image
Baron1

Good Luck, wish you all the best. Take some notes on a daily basis to monitor any changes from the beginning and then compare what happened during the period that you were on them. So at the end, when you decide to stop the experiment it will be easy to see any differences.

easterners profile image
easterners in reply to Baron1

great idea. Thank you. I have made some notes and will try and continue.

Bramma profile image
Bramma

I am in the UK and have applied to participate in the stage3 trial for Ambroxol. Not heard back yet and the trial is due to start in May so keeping my fingers crossed will update with any information.

Badmouth profile image
Badmouth

Would you please tell me the name of pharmacy? Would they ship to the US? I have been taking it for 6 months with good results but my supplier disappeared.

easterners profile image
easterners in reply to Badmouth

these are online pharmacies in poland. They won’t ship outside of poland, unfortunately.

easterners profile image
easterners in reply to Badmouth

if I couldn’t buy it here I would’ve bought it from Indian online pharmacies.

easterners profile image
easterners

one other thought, I see Asian online pharmacies selling ambroxol hcl by the kilogram. This plus a good scale would probably save a lot of money. If I keep this going for several years, I will probably switch to that and measure out the 450 mg at a time.

limcheeese22 profile image
limcheeese22 in reply to easterners

can share where? I see mostly 30mg, then have to take 40 pills per day! OMG!

easterners profile image
easterners in reply to limcheeese22

i would try searching for ambroxol 75mg on Indiamart.com. I have not purchased from the suppliers there, but they seem very responsive and prices are slightly cheaper than Europe.

Despe profile image
Despe in reply to easterners

amazon.de/s?k=ambroxol+75+r...

LiesBram profile image
LiesBram in reply to limcheeese22

I bought 1kg on India mart, i am filling capsules with 420mg and taking 3 per day.

limcheeese22 profile image
limcheeese22 in reply to easterners

yes, able to source a Chinese company, much cheaper and able to customise capsule size

JAS9 profile image
JAS9 in reply to limcheeese22

If you work out how to source it, please let me know! I'm in the US. By the way, capsule makers are inexpensive and pretty easy to use. I've made B1 capsules for years. But whatever works.

Cagey84 profile image
Cagey84

You should adjust your expectations because the phase 3 trial is scheduled to have a 104 weeks treatment period. So you won't necessarily feel better, just not as bad as you would have been if you hadn't taken it. Here's the trial entry - clinicaltrials.gov/ct2/show...

easterners profile image
easterners in reply to Cagey84

how do you know what my expectations are? I am fully aware of the studies parameters.

Henrymor profile image
Henrymor

Thanks so much.

Kwisatz profile image
Kwisatz

It's unnecessary, I took 3x5x75 mg a day for two years. Don't use it.

SowtwareDeveloper profile image
SowtwareDeveloper in reply to Kwisatz

Hello. Why are you saying “Don’t use it.”?

Router_ profile image
Router_

N = 1, so as we treat other stories of success, we should treat stories of no success. Anecdotal evidence of futility. Thank you for your input, how did you measure success, was any progression considered a failure or were you able to tell your progression is "normal" speed?

scienceofparkinsons.com/202...

At the back of this article I am combining ambroxol with NAD. It was mentioned somewhere in there that the combination might make sense.

easterners profile image
easterners

Hi All, I had a couple of people ask me how I'm doing. Just about 3.5 months of 1200mg/day. I have had no negative effects that I am aware of. Helping? Maybe know more in a few years as double bind results come in. I feel fine.

SowtwareDeveloper profile image
SowtwareDeveloper in reply to easterners

Hello easterners . How are you now? Any side effects?

SowtwareDeveloper profile image
SowtwareDeveloper

Hello easterners ,

Thank you for your post and your comments! I hope you will get better and the treatment will reverse your parkinson's disease.

Would like to ask you some questions, if you do not mind.

Are you taking any PD medications along Ambroxol?

Do you have diabetes II ?

Do you have high blood pressure?

Asking those questions because I am willing to start also taking Ambroxol and I do have diabetes II and high blood pressure and I am taking Rasagiline and Sinemet.

Thank you in advance!

Ramipks profile image
Ramipks

How are you now?Does it help?

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