Trials dosage is about 1260 milligrams/day. The previous phase experiments determined that this dose, and not less, raised enzyme level enough to become effective is cleaning out toxic clumps. I started Ambroxol at 17/day x 75mg (1275mg) tablets this week. I feel good so far. Hopeful. Fingers crossed. Wish I was in UK so I could participate in the study so this would be free, but it's also good to know I'm not in the placebo group.
Currently in Europe and ordered it via online pharmacy.
your daily dose is 1275 per day or accumulated 1275 for 17 days?
Would you please tell me which online pharmacy? I would like to take it. Thanks so much.
the places I ordered from do not ship outside of Poland. However, I did see many listings on madeinindia.com website. Which were cheaper than Polish prices. If I was in the USA, I would try there. Good luck to you and all of us.!
i got the name wrong. Indiamart.com
17 capsules/day. 6+6+5.
Please let us know your result!
good luck. looking forward to seeing your findings. i hope you get positive results
thankyou!
Good Luck, wish you all the best. Take some notes on a daily basis to monitor any changes from the beginning and then compare what happened during the period that you were on them. So at the end, when you decide to stop the experiment it will be easy to see any differences.
great idea. Thank you. I have made some notes and will try and continue.
I am in the UK and have applied to participate in the stage3 trial for Ambroxol. Not heard back yet and the trial is due to start in May so keeping my fingers crossed will update with any information.
Would you please tell me the name of pharmacy? Would they ship to the US? I have been taking it for 6 months with good results but my supplier disappeared.
these are online pharmacies in poland. They won’t ship outside of poland, unfortunately.
if I couldn’t buy it here I would’ve bought it from Indian online pharmacies.
one other thought, I see Asian online pharmacies selling ambroxol hcl by the kilogram. This plus a good scale would probably save a lot of money. If I keep this going for several years, I will probably switch to that and measure out the 450 mg at a time.
can share where? I see mostly 30mg, then have to take 40 pills per day! OMG!
i would try searching for ambroxol 75mg on Indiamart.com. I have not purchased from the suppliers there, but they seem very responsive and prices are slightly cheaper than Europe.
I bought 1kg on India mart, i am filling capsules with 420mg and taking 3 per day.
yes, able to source a Chinese company, much cheaper and able to customise capsule size
If you work out how to source it, please let me know! I'm in the US. By the way, capsule makers are inexpensive and pretty easy to use. I've made B1 capsules for years. But whatever works.
You should adjust your expectations because the phase 3 trial is scheduled to have a 104 weeks treatment period. So you won't necessarily feel better, just not as bad as you would have been if you hadn't taken it. Here's the trial entry - clinicaltrials.gov/ct2/show...
how do you know what my expectations are? I am fully aware of the studies parameters.
Thanks so much.
It's unnecessary, I took 3x5x75 mg a day for two years. Don't use it.
Hello. Why are you saying “Don’t use it.”?
N = 1, so as we treat other stories of success, we should treat stories of no success. Anecdotal evidence of futility. Thank you for your input, how did you measure success, was any progression considered a failure or were you able to tell your progression is "normal" speed?
scienceofparkinsons.com/202...
At the back of this article I am combining ambroxol with NAD. It was mentioned somewhere in there that the combination might make sense.
Hi All, I had a couple of people ask me how I'm doing. Just about 3.5 months of 1200mg/day. I have had no negative effects that I am aware of. Helping? Maybe know more in a few years as double bind results come in. I feel fine.
Hello easterners . How are you now? Any side effects?
Hello easterners ,
Thank you for your post and your comments! I hope you will get better and the treatment will reverse your parkinson's disease.
Would like to ask you some questions, if you do not mind.
Are you taking any PD medications along Ambroxol?
Do you have diabetes II ?
Do you have high blood pressure?
Asking those questions because I am willing to start also taking Ambroxol and I do have diabetes II and high blood pressure and I am taking Rasagiline and Sinemet.
Thank you in advance!
How are you now?Does it help?
Hi easterners, I was just wondering if you are still taking Ambroxol?
Ambroxol experience?
Ambroxol?
MSA with Ambroxol HCL - a tentative success story!
Has any tried Ambroxol?
