Something is working for me.: Disclaimer... - Cure Parkinson's

Cure Parkinson's

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Something is working for me.

House2 profile image
30 Replies

Disclaimer: Although I have a degree in Biological Science, I am NOT a physician.

I have made 3 changes to my routine. I’ve added ubiquinol for orthostatic hypotension/

pubmed.ncbi.nlm.nih.gov/290...

PS 128 probiotic

benedlife.com/

And galvanic vestibular stimulation.

journals.sagepub.com/doi/fu...

Since I added all 3 of these I can’t say if it is any of the individual add-ons

Or if it is the combination, but after about 3 weeks, I’ve noticed…

Orthostatic hypotension improved by 50% (I have passed out from it 4x previously)

My mood has improved (anxiety way down) I felt happy last week (it has been so long

I forgot what happy felt like).

I went from “wall walking” to pretty normal balance for most of the day (evenings still are rough).

So a little ray of hope :)

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House2 profile image
House2
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30 Replies
deedee777 profile image
deedee777

What is the name of the galvanic vestibular stimulation device that you use? Can you provide a weblink for this device? Also, how do you use your galvanic vestibular stimulation device, how many times per day, etc. Any additional info you can provide is appreciated. Thank you for sharing your input.

House2 profile image
House2 in reply todeedee777

4mdmedical.com/index.php/ca...

House2 profile image
House2 in reply toHouse2

I'd recommend consulting a PT, chiro or another healthcare provider who is familiar with electrical stimulation techniques to supervise you.

Boscoejean profile image
Boscoejean in reply toHouse2

I was trying to find out if there was a doctor who knew about this treatment in our area but I am not finding anything

House2 profile image
House2 in reply toBoscoejean

Look for a physiotherapist or a neurological chiropractor. Galvanic stimulation has been around for decades, using it for vestibular rehab is new.

House2 profile image
House2 in reply toBoscoejean

Maybe look here. acnb.org/doctor-search/

Boscoejean profile image
Boscoejean in reply toHouse2

surprisingly we are going to a chiropractic neurologist this morning for the first time so I guess I can ask her if she is aware of this

House2 profile image
House2 in reply toBoscoejean

Let us know, how it goes.

Kelrjd profile image
Kelrjd in reply toHouse2

Is this the same as a tens unit?

House2 profile image
House2 in reply toKelrjd

Similar, but definitely not the same.

TL500 profile image
TL500 in reply toHouse2

do you think it can be use for cerebral palsy?

House2 profile image
House2 in reply toTL500

youtu.be/EW8uBRYxWZw

TL500 profile image
TL500 in reply toHouse2

Thanks.

LindaP50 profile image
LindaP50

Fantastic. Good to hear positive improvements.

Smittybear7 profile image
Smittybear7

Wishing you continued success

Bari2000 profile image
Bari2000

great thanks for the information

House2 profile image
House2

FYI. youtu.be/tCLsAgPuumw

slimweiss profile image
slimweiss

So watching this makes it look like the GVS makes things worse!

House2 profile image
House2 in reply toslimweiss

This shows a healthy person, I fall to my right, with the anode on the left ear I'm "centered"

slimweiss profile image
slimweiss in reply toHouse2

Oh!!! So it shows how it affects one side or the other. My husband doesn't fall but he leans left and his posture is very stooped. I wonder if this would help with that.

House2 profile image
House2 in reply toslimweiss

The body is pulled towards the anode +

Fumaniron profile image
Fumaniron

Interesting! What inspired you to try home galvanic stimulation? Were you doing balance/vestibular rehab and they recommended it?

House2 profile image
House2 in reply toFumaniron

My chiropractor introduced me to all sorts of eStim long before I developed PD. I've been a fan of it for years. Since my PD diagnosis and wanting to avoid Deep Brain stimulation, I've been searching for ways I can stimulate my brain W/O the surgery.

Jdig profile image
Jdig

That is great news, House2 - thanks for sharing this. I think it’s particularly encouraging that your mood has lifted.

Astra7 profile image
Astra7

I like these posts. Please keep us updated - sounds like you are onto something.

francis6 profile image
francis6

I have undergone galvanic vestibular stimulation as part of a research project at the University of Kent in the UK. They have also carried out a trial of caloric vestibular stimulation that showed some promising results. Its definitely an area worth looking at.

Goldencbc profile image
Goldencbc

I’m happy to hear good news. Keep us informed!

TL500 profile image
TL500

Hi, I tried to order the probiotic but not only it's too expensive, the shipping cost for me is $99USD.

House2 profile image
House2

it is expensive

TL500 profile image
TL500

Hi House2, do you take PS128 at bedtime? With how much water?

How far apart from other things? Thanks

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