My sleep quality has declined substantial... - Cure Parkinson's

Cure Parkinson's

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My sleep quality has declined substantially over the past month. (Maybe time to give up coffee and see what happens.)

MBAnderson profile image
20 Replies

Sleep is your superpower | Matt Walker

TED 19 min

youtube.com/watch?v=5MuIMqh...

6 tips for better sleep | Sleeping with Science, a TED series

youtube.com/watch?v=lRp5AC9...

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MBAnderson profile image
MBAnderson
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20 Replies
Gcf51 profile image
Gcf51

I limit myself to 2cups on regular coffee in morning. Then drink decaf the rest of the day.

HekateMoon profile image
HekateMoon in reply toGcf51

Check compounds on decaf...there is a very evil one...cant remember the name tetra...something. sorry my sciencey memory is not great...Barley cup is a good substitute...i just threw away my decaf. Today.

Gcf51 profile image
Gcf51 in reply toHekateMoon

Denatured has a bad connotation. I mainly drink decaf, not because of sleep issues, but because of High BP. Now that BP is better controlled maybe I will switch to regular till at least noon.

The most-common methods of decaffeination involve chemical solvents, usually ethyl acetate or methylene chloride. In the direct method, the coffee beans are steamed and then rinsed repeatedly with the chemical solvent to flush away the caffeine. britannica.com/story/how-is....

ryzlot profile image
ryzlot in reply toHekateMoon

Trichlorethelyne - dry cleaning fluid

Gcf51 profile image
Gcf51 in reply toryzlot

TCE had many uses in the past. It was used as a grain fumigant and pet food additive until its use was banned for food and medical uses in 1977. Until the mid-1970s, it was used to extract vegetable oils and spices and to extract caffeine for the production of decaffeinated coffee. atsdr.cdc.gov/tox-tool/tric...

I am not saying the use of any solvent is good....

See MBAnderson 's post below healthunlocked.com/cure-par...

HekateMoon profile image
HekateMoon in reply toryzlot

🤢🤢🤢🤢

Kevin51 profile image
Kevin51

Me too! Keeping cool enough at night without aircon is a challenge but a fan helps.

Coffee in the morning is probably ok - I stop at 12 noon so that gives me ten hours to clear the caffeine out of my system. Could not operate without a.m. coffee!

There ought to be an in-depth video on sleep for PwPs as there are so many specific issues for us.

I can fall asleep when I'm drinking a cup of coffee!Í didn't sleep very well for about 10 yrs, but I sleep much better now that I use a weighted blanket. I thought it would be hot but it keeps my temperature pretty even. I also wear satin/silk pajamas which helps me turn over.

🥊 laglag

ddmagee1 profile image
ddmagee1

Same here! I wonder if worrying about a Putin/like Dictator taking over my country, the USA, has anything to do with that, or could it be PD? My neurologist is not helpful, in explaining loss of sleep, for people with PD, to me! I have cut back on my caffeine, and now, here it is, the 2am, PD blogging time, again!

HekateMoon profile image
HekateMoon in reply toddmagee1

There are too many dictators all over the shop. Our sovereignty being taken away from us is a concern. At personal level especially. Searching the truth is a good way to take care of our lives. No much more we can do. Researching, supporting one another, eating well, exercising, informing ourselves, and not permitting any power hungry person anywhere to steal our sleep.

slimweiss profile image
slimweiss in reply toHekateMoon

And keep remembering who really is in control!

alaynedellow profile image
alaynedellow

I cut out my eve dose of cr madopar n back to 8 hrs of gd sleep. With it i would wake for gd 2-3 hrs a night- exhausted followongday

LindaP50 profile image
LindaP50

Hi! Have you cut down on activity by chance? It's been hot and humid here for a good part of August. Know hubby (PW)P and I weren't as active as always. He'll have regular tea every other day. Otherwise he drinks decaf.

I had trouble staying asleep and switched to half caff coffee. Once my sleeping got better went back to full caff. But feel I should stick to half caff, just haven't bought into that idea yet.

KERRINGTON profile image
KERRINGTON

Maybe it's the Red Light ? I usually have no sleep issues, but I think since I started using my Red Light Coronet I started going to sleep earlier, and earlier, corresponding with an earlier, and earlier wake up. This left me tired, I have had it since 1/2022, used 1x a day, then 2x a day then time off, back on 1x daily, but not consistent lately. My sleep seems ok now. There may be a correlation, who knows ?

ParlePark profile image
ParlePark in reply toKERRINGTON

For me, 1/2 caf way to go.

rebtar profile image
rebtar

My sleep improved when I cut bedtime c/l dose from 50/200 to 25/100 CR.

goldengrove profile image
goldengrove

Depends on how quickly you metabolise caffeine. From a DNA study I found out I was a slow metaboliser so I cut it out - only drink decaf. Also I take 3 grams of glycine and a magnesium taurate capsule at bedtime and that gives me great sleep 6 nights out of 7, after years of waking nightly at about 3am and staying awake for hours. But I don't yet have PD - glycine is an amino acid and maybe it shouldn't be taken at the same time as L-dopa.

MBAnderson profile image
MBAnderson

This article says its bad.

"Decaf Coffee Still Contains This Harmful Chemical, Experts Warn"

eatthis.com/news-decaf-coff...

This article says its not.

"Is decaf coffee harmful to health?"

medicalnewstoday.com/articl...

I trust this site

"Decaf Coffee: Good or Bad?"

"Despite having been demonized in the past, the truth is, coffee is mostly good for you."

healthline.com/nutrition/de...

Gcf51 profile image
Gcf51 in reply toMBAnderson

The eatthis title sounds like conspiracy theory. I would agree healthline should be more trustworthy...

JerryinSATX profile image
JerryinSATX

I'm only a few years into the PD journey, but my sleep has dramatically improved since I adopted a few practices. I take magnesium with my evening meal and especially since it's been hot, take a shower 1/2 hour before going to bed. I also use magnesium oil on my knees which has helped with restless legs. According to my smart watch I average just over 7 hours of sleep with 2-3 hours of deep sleep.

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