My new neurologist changed my levodopa/cardopa to extended release 50/200 8 am,4pm,8pm and bed time I'll take at midnight.
I'll wake up around 4 am and take 1 25/100 and another when I wake up, which could be 6, 7 am.
Immediate release 25/100 10 am, 2, 6, and as needed. To much of a gap, one 25/100 pill will last only two hours, so I'll have to take 1 pill at 12 pm and 4pm.
I was taking 1 and half 25/100 every 2 hours on a good day 1 hour half sometimes , I'm getting more on time 3 hours on a good day with using extended release. I'm trying to stay on a schedule, because I had no schedule I just took Immediate Release when I needed it, I'm trying to follow a schedule, I find I need a pill 25/100 to stop shaking and my new symptom my lips fold inward , I have to hold lip down to talk ugh! Sometimes it's depends if my food has interfered with pills, and then I'll have to take a muscle relaxant half, I try not to take them, and lately I've been using the Inbrija for when I completely need dopamine, and seriously off, especially when I eat protein, I am a meat eater , but it's weird because sometimes my protein meal won't Interfere.
I did stop using inbrija a while ago it was hurting my throat and lungs, but had to use it lately.
I do have a question with the extended release , all I smell is whatever is in the pill, it can be very strong sometimes and I smell it in my urine to, yuk it makes me nausea because that's all I smell.
Also, my tremors are much faster now and when my pills are running out, I have to sit down, I get stiff and can't walk, I'll get stuck at the bathroom door when trying to make that corner turn, and if I have to walk, I walk backwards, I guess it's because you don't have to lift feet, I used to be able to walk when I was off, these are all new problems 2022, I've had Parkinsons symptoms since 2012. I pray for a cure, this is getting harder and harder!!