Has anyone tried to order syncolein lately? - Cure Parkinson's

Cure Parkinson's

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Has anyone tried to order syncolein lately?

LAJ12345 profile image
19 Replies

I just ordered some and my money was refunded with a comment buy mannitol from somewhere else. Has anyone else had this? I’m not sure if he has stopped selling it but the webpage lets you order still.

And what is a good alternative source that ships to New Zealand?

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LAJ12345
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19 Replies
Bolt_Upright profile image
Bolt_Upright

I order this. It is available at Amazon NZ: amazon.com/Mannitol-Powder-...

LAJ12345 profile image
LAJ12345 in reply toBolt_Upright

Thanks. But sadly that is unavailable. I wonder if there is a shoratage?

Bolt_Upright profile image
Bolt_Upright in reply toLAJ12345

Sorry, I thought I was at the NZ Amazon site. Now at the AU site and see there is nothing.

Bolt_Upright profile image
Bolt_Upright in reply toBolt_Upright

I guess if you go to the US site and say you want to ship to NZ it only shows you what AU has :(

LAJ12345 profile image
LAJ12345 in reply toBolt_Upright

Maybe they are keeping in just for the US like they did for thiamine earlier on.

Bolt_Upright profile image
Bolt_Upright in reply toLAJ12345

I'm cool with that :)

LAJ12345 profile image
LAJ12345 in reply toBolt_Upright

I finally found some at bulk supplements. Hopefully it works.

Syncolein supplier when asked if they aren’t selling it anymore only replied “I’m so sorry” with absolutely no explanation of whether he is still doing it or not or whether it has just run out.

Bolt_Upright profile image
Bolt_Upright in reply toLAJ12345

From Australia: ebay.com/itm/164346817495?h...

alaynedellow profile image
alaynedellow

Don who sells syncolein is an elderly gentleman with PD maybe he is unwell. I wish him well

LAJ12345 profile image
LAJ12345 in reply toalaynedellow

I see, maybe that is the problem .

Buckholt profile image
Buckholt

Blackburn distributions delivers internationally.

blackburndistributions.com/...

LAJ12345 profile image
LAJ12345 in reply toBuckholt

Thanks. I managed to buy some from bulk supplements.

gwendolinej profile image
gwendolinej in reply toLAJ12345

Others here use BulkSupplements.

Re Syncolein, back in May, I got a reply from Don McCammon, when I wrote to him, after hearing him speak on the radio. He said he’d had an accident and “had to give up his Syncolein Endeav’ors”. I wasn’t really sure what he meant.

I get our mannitol from a wholesale supplier here in Australia, who imports it as a diabetic sweetener It’s the Sosa brand and is very well priced. I know they don’t send to New Zealand, as someone else tried. You may be able to get it direct. Other members have. The company is in Spain .

Gwendoline

LAJ12345 profile image
LAJ12345 in reply togwendolinej

Ah that makes sense. He should really close his website then or at least stop payments from it.

I think I did try to order one from Australian before and wasn’t able to. Postage from Australia seems horrendous too and packs were quite small?

I have had bulk supplements for other products so hopefully it will be ok. It doesn’t have the enzyme that stops gas so I might have to be prepared for “side effects”.🤢

gwendolinej profile image
gwendolinej in reply toLAJ12345

Ha, yes, you are the one that tried to get mannitol from Australia. I remember. It is so cheap. It’s wholesale of course. I had to have an ABN and open an account. It’s $17.00 for 500 qrams. Pity about the postage.

As I mentioned, a couple of members said they sourced it directly from Sosa in Spain. They may have lived in Europe, of course. Probably worth a try to ask at some stage.

Alan had been on a medication for “gas”. I think back then wine probably contributed quite a bit. I just reintroduced the medication with the mannitol. Seems to work.

I remember a member mentioning that mannitol from Bulk Supplements gave him back his sense of smell, and when they were out of stock and he tried another supplier, he lost his sense of smell again. There was a discussion as to why. I think it was Marion who gave a possible explanation. It had to do with mannitol’s origins. I then tried to get some from Bulk Supplements, but they were out . I then tried some from EBay, but it didn’t help with that issue.

Maybe I should order some again. Maybe we need a change.

Gwendoline

faridaro profile image
faridaro

There is Israeli website that sells mannitol+mucuna, not sure in what percentages though -top-probiotics.com/mannitol

They ship worldwide but look quite expensive.

LAJ12345 profile image
LAJ12345 in reply tofaridaro

Interesting. Thanks.

FawnLily profile image
FawnLily

I had the same issue trying to order Syncolein a few months ago. If he is no longer selling, the website should say so and the order form disabled. I use Bulk Supplements mannitol.

Missy0202 profile image
Missy0202

I am from Canada and first tried to ship it here, and he refunded my money and said he could not ship to Canada. Then I tried again, and had it shipped to a US address, and he refunded my money again without an explanation

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